'Can you stop my multiple sclerosis?'

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.
Post Reply
User avatar
MSUK
Family Elder
Posts: 2903
Joined: Wed Oct 14, 2009 2:00 pm
Contact:

'Can you stop my multiple sclerosis?'

Post by MSUK »

Missed the #BBCPanorama programme 'Can you stop my multiple sclerosis?', you can view it here http://www.bbc.co.uk/programmes/b06ss17g #ms

If you have questions our Helpline is open from 9am today - phone, email and live web chat available. http://www.ms-uk.org/helpline
MS-UK - http://www.ms-uk.org/
User avatar
CureOrBust
Family Elder
Posts: 3374
Joined: Wed Jul 27, 2005 2:00 pm
Location: Sydney, Australia

Re: 'Can you stop my multiple sclerosis?'

Post by CureOrBust »

MSUK wrote:Missed the #BBCPanorama programme 'Can you stop my multiple sclerosis?', you can view it here http://www.bbc.co.uk/programmes/b06ss17g
only available to the UK

I checked YouTube, and it appears that it may be available in the future. eg https://www.youtube.com/watch?v=E80eHwsKHnY
Thomas
Family Elder
Posts: 137
Joined: Mon Mar 07, 2005 3:00 pm
Contact:

Re: 'Can you stop my multiple sclerosis?'

Post by Thomas »

Jaded
Family Elder
Posts: 440
Joined: Tue Jul 26, 2005 2:00 pm

Re: 'Can you stop my multiple sclerosis?'

Post by Jaded »

I saw this and my initial reaction was that I want it.

The thought of NO MORE MS - what a freedom that feels.

It seems the ones with the least damage benefitted the most. They didn't focus too much on the chemo but the participants did mention how tough that was - losing hair, the tiredness. Of course this is in early stages - but I would still risk it. No question. Just to get my life back.

J.
User avatar
1eye
Family Elder
Posts: 3780
Joined: Wed Mar 17, 2010 3:00 pm
Location: Kanata, Ontario, Canada
Contact:

Re: 'Can you stop my multiple sclerosis?'

Post by 1eye »

If you've heard very little in the dozen years or so since they started doing these treatments :-| , maybe it's because 1)it doesn't always work 2)sometimes it kills 3) they don't know what they're treating, or why it works, when it does work 4) you have to be young and strong to survive it - they aren't treating anybody over 50.

What you do hear is the same story being repeated every 6 months or so. Like clockwork. Why? My guess is they are just running it up the flagpole again to see if anyone salutes it.
This unit of entertainment not brought to you by FREMULON.
Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
Jaded
Family Elder
Posts: 440
Joined: Tue Jul 26, 2005 2:00 pm

Re: 'Can you stop my multiple sclerosis?'

Post by Jaded »

I thought this was a fresh report - dated 18 Jan on the MS UK Org website. So whilst I have been aware of this treatment it was good to see that it worked for some people. That has to be progress.
User avatar
CureOrBust
Family Elder
Posts: 3374
Joined: Wed Jul 27, 2005 2:00 pm
Location: Sydney, Australia

Re: 'Can you stop my multiple sclerosis?'

Post by CureOrBust »

HSCT has been working for some people (ie early stage and aggressive MS) for a long time now.
Jaded
Family Elder
Posts: 440
Joined: Tue Jul 26, 2005 2:00 pm

Re: 'Can you stop my multiple sclerosis?'

Post by Jaded »

Thanks Cure

It's certainly peaked my interest. I'm going to look into it a little more.
Post Reply
  • Similar Topics
    Replies
    Views
    Last post

Return to “General Discussion”