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'Can you stop my multiple sclerosis?'
Posted: Tue Jan 19, 2016 1:11 am
by MSUK
Missed the #BBCPanorama programme 'Can you stop my multiple sclerosis?', you can view it here
http://www.bbc.co.uk/programmes/b06ss17g #ms
If you have questions our Helpline is open from 9am today - phone, email and live web chat available.
http://www.ms-uk.org/helpline
Re: 'Can you stop my multiple sclerosis?'
Posted: Tue Jan 19, 2016 4:20 am
by CureOrBust
only available to the UK
I checked YouTube, and it appears that it may be available in the future. eg
https://www.youtube.com/watch?v=E80eHwsKHnY
Re: 'Can you stop my multiple sclerosis?'
Posted: Wed Jan 20, 2016 8:27 am
by Thomas
Re: 'Can you stop my multiple sclerosis?'
Posted: Wed Jan 20, 2016 10:06 am
by Jaded
I saw this and my initial reaction was that I want it.
The thought of NO MORE MS - what a freedom that feels.
It seems the ones with the least damage benefitted the most. They didn't focus too much on the chemo but the participants did mention how tough that was - losing hair, the tiredness. Of course this is in early stages - but I would still risk it. No question. Just to get my life back.
J.
Re: 'Can you stop my multiple sclerosis?'
Posted: Wed Jan 20, 2016 11:17 am
by 1eye
If you've heard very little in the dozen years or so since they started doing these treatments

, maybe it's because 1)it doesn't always work 2)sometimes it kills 3) they don't know what they're treating, or why it works, when it does work 4) you have to be young and strong to survive it - they aren't treating anybody over 50.
What you do hear is the same story being repeated every 6 months or so. Like clockwork. Why? My guess is they are just running it up the flagpole again to see if anyone salutes it.
Re: 'Can you stop my multiple sclerosis?'
Posted: Thu Jan 21, 2016 1:37 am
by Jaded
I thought this was a fresh report - dated 18 Jan on the MS UK Org website. So whilst I have been aware of this treatment it was good to see that it worked for some people. That has to be progress.
Re: 'Can you stop my multiple sclerosis?'
Posted: Thu Jan 21, 2016 3:49 am
by CureOrBust
HSCT has been working for some people (ie early stage and aggressive MS) for a long time now.
Re: 'Can you stop my multiple sclerosis?'
Posted: Thu Jan 21, 2016 5:12 am
by Jaded
Thanks Cure
It's certainly peaked my interest. I'm going to look into it a little more.