This Is MS Multiple Sclerosis Knowledge & Support Community

I have had a majority of the test done other than a spinal MRI. I've even had a special Lyme's disease test. Everything was normal accept they found numerous small lesions on my brain MRI. None around the ventricles. Report stated "not consistent with MS". But I have symptoms ongoing for months. Twitching, tingling, pain in legs, upper back tightness. My left leg is somewhat wobbly, but that appears to be more from the pain.

My most recent problem is I feel like I'm jumping out of my skin. I can not sit still or lay in bed without tossing or turning or moving around. It seems like an anxiety attack that never ends. Is this restlessness from MS or is it more anxiety with me constantly thinking this is MS and I will soon lose my ability to walk?

I am a male in my mind 40's. I have never taken medication in my life, but now all I can think about is taking a Clonazapam to calm me down and let me sleep a few hours. It is amazing though, when I do take a .25 mg Clonazapam my symptoms decrease by about 90%. The only thing I continually notice is the twitching in my calves. So, is this my future, relying on a highly addictive benzo to allow me to relax a few hours a day?

Have you ever tried GABA? Magnesium can also help with twitchy muscles. Try magnesium glycinate or magnesium citrate but NOT magnesium oxide. The oxide form is poorly absorbed and has laxative effects.

Yes, I have tried it all. I am seeing a wonderful naturopath that has me on Mag Citrate, Calcium powder, high end phyto multi-vitamins, Vitamin D liquid (last test at 79), high doses of liquid fish oil, probiotics, etc. She also has me on Gaba Hydroxy. I think I am just stressing about what is going on with my body. As soon as I take a benzo I am back to normal at least mentally.
I'm just curious if these lesions on my brain are affecting my sleep patterns. Everytime I close my eyes my mind starts racing and I can't seem to relax like I used to. Maybe it's just old age. I have an appointment with an MS specialist at the Cleveland Clinic on Monday. Maybe I will finally get some answers. Thank you.

oddity wrote:Yes, I have tried it all. I am seeing a wonderful naturopath that has me on Mag Citrate, Calcium powder, high end phyto multi-vitamins, Vitamin D liquid (last test at 79), high doses of liquid fish oil, probiotics, etc. She also has me on Gaba Hydroxy. I think I am just stressing about what is going on with my body. As soon as I take a benzo I am back to normal at least mentally.
I'm just curious if these lesions on my brain are affecting my sleep patterns. Everytime I close my eyes my mind starts racing and I can't seem to relax like I used to. Maybe it's just old age. I have an appointment with an MS specialist at the Cleveland Clinic on Monday. Maybe I will finally get some answers. Thank you.

If 79 was your last test, what was the number result on your first test (or lowest value on any)? How many IU (International Units) of the liquid vitamin D do you take daily? How long have you been taking the supplemental vitamin D?

If you live in Ohio, it would not be surprising for you to have vitamin D deficiency. Vitamin D is needed by every system in the body. The vitamin D level in the blood can be raised to a higher level relatively quickly with a high-dose supplement; it takes longer to replenish the cells and tissues.

Every time I went to my PCP/GP over the past several years she always told me my VIT D level was fine. Turns out it was always in the high 20-30's. This was totally wrong and I should have been where I am at today. Now it might be a little too late. Big lesson learned! Anyhow, I appreciate your responses.