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For the past three or four years- I have had an issue at night where my right eye has been giving me severe issues. I have only noticed this at night, where it is almost like it is just dimmer than the other eye. Not quite a black curtain effect but blurred and difficult to see. I was diagnosed with ocular migraines and told to effectively get over it. Last year it got worse and would not go away until the next morning. Now it is still happening- but i have gotten so used to it that I really haven't noticed if it has gotten better or worse.

Around the same time this started so did the "shocks" of pain. I usually get it in my arms, hands, legs.. almost like a feeling of a currant flowing very quickly through. Its extremely painful and then its over. Its gotten to the point where I'm just so depressed Its hard to wake up in the morning, I briefly went on anti depressants but it seemed to make everything worse. I have gotten so many MRIs in the past couple of years always showing up empty handed, I am desperate. I feel like i'm loosing my mind- Has anyone had anything similar and had clean MRIS?

+ wanted to add some additional information

My Primary has had me take 2,000 of vitamin d for the past two years for low vitamin d levels- however i have not yet gotten a yearly physical

+ I have seen two retina specialist with different opinions of what is going on.


I am unsure of what my next steps need to be and what questions i need to be asking to get out of this limbo

jmbanon wrote:For the past three or four years- I have had an issue at night where my right eye has been giving me severe issues. I have only noticed this at night, where it is almost like it is just dimmer than the other eye. Not quite a black curtain effect but blurred and difficult to see. I was diagnosed with ocular migraines and told to effectively get over it. Last year it got worse and would not go away until the next morning. Now it is still happening- but i have gotten so used to it that I really haven't noticed if it has gotten better or worse.

Around the same time this started so did the "shocks" of pain. I usually get it in my arms, hands, legs.. almost like a feeling of a currant flowing very quickly through. Its extremely painful and then its over. Its gotten to the point where I'm just so depressed Its hard to wake up in the morning, I briefly went on anti depressants but it seemed to make everything worse. I have gotten so many MRIs in the past couple of years always showing up empty handed, I am desperate. I feel like i'm loosing my mind- Has anyone had anything similar and had clean MRIS?

+ wanted to add some additional information

My Primary has had me take 2,000 of vitamin d for the past two years for . - however i have not yet gotten a yearly physical

+ I have seen two retina specialist with different opinions of what is going on.


I am unsure of what my next steps need to be and what questions i need to be asking to get out of this limbo

At your yearly physical exam, request the vitamin D test (the "25-hydroxy D" test). Also, ask for copies of all your past vitamin D tests AND a copy of this latest test to be done. It is important to have the actual number results.

If your PCP had determined your vitamin D level was low, there should have been at least two repeat tests done each year after in order to be sure you had reached an optimal level (NOT a minimal level!) AND maintained the optimal level.

I encourage you to read through the GrassrootsHealth website: www.GrassrootsHealth.net
This California-based organization currently recommends that the 25-hydroxy D level should be 40-60 ng/mL.

Thank you so much, I will most certainly be requesting that information