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How many relapses since diagnosis?
Posted: Sun Jul 10, 2016 1:10 am
by sadieForever
I have been diagnosed in 2012,i have had 2 known relapses since then,and one that doctors doubt is ms flare,since it lasted only 2 days(with no steroids).How has ms been for you and how do you feel?
apart from depression i am ok ,thanks God ,but worried what future might bring one day
Re: How many relapses since diagnosis?
Posted: Sun Jul 10, 2016 3:49 am
by herecomesthesun
It's wonderful to hear you're doing pretty well! I was dx'd in 2011 and would say average 2 relapses a year, though might be more than that. I've gotten to a point where it feels nearly constant as my relapses like to hang around for months. I try to avoid steroids and reserve them for when optic neuritis flares up, I'll take a limp over fuzzy or double vision any day.
Re: How many relapses since diagnosis?
Posted: Sun Jul 10, 2016 1:39 pm
by Snoopy
I was diagnosed in 1985 at the age of 24, with symptoms that go back to childhood.
I have had 6 exacerbations (relapse, attack, flare-up).
My biggest issue, from the beginning, has been my mobility.
However, I am still walking.
Re: How many relapses since diagnosis?
Posted: Sun Jul 10, 2016 1:57 pm
by sadieForever
Snoopy wrote:I was diagnosed in 1985 at the age of 24, with symptoms that go back to childhood.
I have had 6 exacerbations (relapse, attack, flare-up).
My biggest issue, from the beginning, has been my mobility.
However, I am still walking.
Glad to hear you are doing great,,how close to eachother have your relapses been? i read its important predictor of how your ms will be if you know the time between 1 and 2 relapse
Re: How many relapses since diagnosis?
Posted: Sun Jul 10, 2016 5:07 pm
by ElliotB
I was diagnosed almost 3 1/2 years ago (age 54), had a relapse shortly after my diagnosis and then another about 6 month later which caused some nerve damage which still affects me. But I have been relapse free for over 2 years thankfully and overall am doing quite well.
Re: How many relapses since diagnosis?
Posted: Mon Jul 11, 2016 3:58 am
by Snoopy
sadieForever wrote:
how close to eachother have your relapses been? i read its important predictor of how your ms will be if you know the time between 1 and 2 relapse
My exacerbations, one in each year:
1985
1986
1994
2001
2002
2014
Be careful about "predictors" as this disease is unpredictable and can change at anytime.
Re: How many relapses since diagnosis?
Posted: Thu Jul 14, 2016 4:46 am
by sadieForever
i feel like every time i start thinking about ms,and it gets me down/depressed ,i feel more symptoms,,hopefully that is just me not the ms
Re: How many relapses since diagnosis?
Posted: Thu Jul 14, 2016 11:51 am
by ElliotB
" feel like every time i start thinking about ms..."
There are many things you can do to avoid depression and feel great!
Re: How many relapses since diagnosis?
Posted: Thu Jul 14, 2016 4:14 pm
by gramcjk
I have MS, BUT MS does not have me. I refuse to accept DX. Just try to be positive every moment of the day!!
GRAMCJK