Hello

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Zyklon
Family Elder
Posts: 401
Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon »

Small update:

Close to becoming a Q-Grader (arabica coffee grader/expert/gourmet, 5000 in the world, not sure about any with MS)

For 1 week, I was able to wake up and sleep just like a normal person. So I guess it is all psychologic. Almost the same regimen.

Really intense training, lots of effort. My hot tolerance is good, sweating like normal. Walking plenty.

I am ready for my second attack and beyond ;)
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
Zyklon
Family Elder
Posts: 401
Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon »

Nothing to update. Visiting forum almost every day.

Listening Slipknot's new album: "We are not your kind". My vagus nerve is perfectly happy :twisted:
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
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jimmylegs
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Re: Hello

Post by jimmylegs »

enjoy!
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Zyklon
Family Elder
Posts: 401
Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon »

Small update :)

I have been working full time for 1months. It was something that I had doubts about. Tests soon. No regimen change for months.

Daily visiting tims. Take care, stay healthy ;)
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
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jimmylegs
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Re: Hello

Post by jimmylegs »

congrats!
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Zyklon
Family Elder
Posts: 401
Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon »

Yeeeeey I have Influenza A/H1N1 aka swine flu. Not much fever, bad cough, sore throat, Rebif kinda hits me more, something is going on with my body but nothing to worry about. Only cough syrup, paracetamol, vinegar.
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
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jimmylegs
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Posts: 12592
Joined: Sat Mar 11, 2006 3:00 pm

Re: Hello

Post by jimmylegs »

hope you're feeling better! how's the rest of your regular maintenance regimen going, other than the rebif and the current cough syrup, pain killers and vinegar?
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Zyklon
Family Elder
Posts: 401
Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon »

My regimen is almost the same. Tests and yearly MRI in the next month.
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
Zyklon
Family Elder
Posts: 401
Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon »

Covid-19 has kinda messed me up. I almost managed to discontinue citoplaram until 2 days ago. I had 1 major and 1 mild panic attack in the night. I have doubled my dose to 10mg and gonna continue for a few months. I have been staying at home for 9 days. Annual checks have postponed.

Really bored :twisted:
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
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jimmylegs
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Posts: 12592
Joined: Sat Mar 11, 2006 3:00 pm

Re: Hello

Post by jimmylegs »

hi :) no idea what your regimen and status is like right now, but this trial may interest you:
fft: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6298677/
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Zyklon
Family Elder
Posts: 401
Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon »

Yeeey long time without a post :)

Everything going the same. I try to stay home. Still no MS-related updates. No Covid-19 for me.

I have opened a Turkish and English blog. thisisms.com is my first love :) I will share everything I have shared here. This is the place where I will share something new first.

What is the Tims policy for such outside blogs? Can I give a link to Tims from my blog?

Stay safe, take care ;)
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
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NHE
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Joined: Sat Nov 20, 2004 3:00 pm
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Re: Hello

Post by NHE »

Zyklon wrote: Sun Feb 28, 2021 5:38 amWhat is the Tims policy for such outside blogs? Can I give a link to Tims from my blog?
Sure.
Zyklon
Family Elder
Posts: 401
Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon »

Last edited by Zyklon on Sat Mar 13, 2021 1:54 am, edited 1 time in total.
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
User avatar
NHE
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Joined: Sat Nov 20, 2004 3:00 pm
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Re: Hello

Post by NHE »

Zyklon wrote: Fri Mar 12, 2021 6:41 am https://livingwithms.com
https://msileyasamak.com (Turkish)

;)

The Google translator works. https://translate.google.com/translate? ... mak.com%2F
Zyklon
Family Elder
Posts: 401
Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon »

I am going to update the English version as long as I have time. Both blogs will be the same.
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
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