New member with questions
Posted: Tue Dec 04, 2018 6:57 am
Hi, I’ve just joined due to my daughter’s recent MS diagnosis. She mainly experiences eye issues at this time and has had different eye symptoms (double vision, feels like she’s seeing things through a kaleidoscope, etc.)off and on for years. After seeing 3 ophthalmologists and 2 neurologists she finally has a diagnosis that is not pertaining to anxiety.
I am not diagnosed with MS but would like to know other member’s experiences. (I have read some of the stories on the forum.) I first experienced a flash of light in the peripheral vision of my right eye 6 years ago. At first I thought a piece of paper fell on the ground. After the flashes of light increased significantly I made an appointment with a retinal specialist. She could not find a reason for my symptom. I then woke up a couple weeks later with photophobia, and a red, sore eye. I don’t recall her exact diagnosis other than uveitis, with a mention of optic nerve inflammation and cupping of optic disc after Fluorescein angiogram. Many blood tests were done and all came back normal.
In the next few months I felt weakness in both legs with muscle twitches and parasthesia on face, arms and legs and visited my pcp with my story. He sent me to a neurologist and mri of brain followed with no lesions found. Again, since no cause found, “there’s nothing we can do”.
I’ve been to 3 ophthalmologists, 1 neurologist and a rheumatologist...nothing abnormal found. So, I figure I’m a hypochondriac and keep my mouth shut... must be from anxiety and that is what I told my daughter about her symptoms when nothing was found. Yes, I feel guilty.
My daughter’s diagnosis came a few weeks ago and I’ve gone with her for her lumbar puncture and neurologist follow up. She lives 1000 miles away so I can’t be there all the time. I flew back home the week of Thanksgiving and woke up feeling ill. My legs felt weak, my muscles twitched, mainly in the legs and I was extremely tired, much more than the usual. I’d been having sharp, intermittent pains for a long time (only one a day or so) but when I asked my husband if he gets them, he said no. I also noticed before this, my “flash” was back in my peripheral vision. Since then I’ve had some very painful “stabs” of pain in many different locations (up to 40 a day). I have had tingling in left hand and then left foot. A particularly painful stab in my left hip yesterday left me with what felt like partial numbness of left thigh. EVERYTHING intermittently, thankfully.
I’m sorry to go on and on...just wondering if others with MS have symptoms like these??
I am not diagnosed with MS but would like to know other member’s experiences. (I have read some of the stories on the forum.) I first experienced a flash of light in the peripheral vision of my right eye 6 years ago. At first I thought a piece of paper fell on the ground. After the flashes of light increased significantly I made an appointment with a retinal specialist. She could not find a reason for my symptom. I then woke up a couple weeks later with photophobia, and a red, sore eye. I don’t recall her exact diagnosis other than uveitis, with a mention of optic nerve inflammation and cupping of optic disc after Fluorescein angiogram. Many blood tests were done and all came back normal.
In the next few months I felt weakness in both legs with muscle twitches and parasthesia on face, arms and legs and visited my pcp with my story. He sent me to a neurologist and mri of brain followed with no lesions found. Again, since no cause found, “there’s nothing we can do”.
I’ve been to 3 ophthalmologists, 1 neurologist and a rheumatologist...nothing abnormal found. So, I figure I’m a hypochondriac and keep my mouth shut... must be from anxiety and that is what I told my daughter about her symptoms when nothing was found. Yes, I feel guilty.
My daughter’s diagnosis came a few weeks ago and I’ve gone with her for her lumbar puncture and neurologist follow up. She lives 1000 miles away so I can’t be there all the time. I flew back home the week of Thanksgiving and woke up feeling ill. My legs felt weak, my muscles twitched, mainly in the legs and I was extremely tired, much more than the usual. I’d been having sharp, intermittent pains for a long time (only one a day or so) but when I asked my husband if he gets them, he said no. I also noticed before this, my “flash” was back in my peripheral vision. Since then I’ve had some very painful “stabs” of pain in many different locations (up to 40 a day). I have had tingling in left hand and then left foot. A particularly painful stab in my left hip yesterday left me with what felt like partial numbness of left thigh. EVERYTHING intermittently, thankfully.
I’m sorry to go on and on...just wondering if others with MS have symptoms like these??
