Newly diagnosed; looking for info on experiences with Tysabri
Posted: Mon Sep 09, 2019 2:52 am
Hi all,
I'm 26 and was diagnosed with RRMS in August. I’d never experienced any medical issues and had never been to hospital before, however at the beginning of May I was admitted to the Neurological ward with extreme symptoms and remained there for a month before being discharged just in time for my birthday. At the time I was at risk of entering a coma, as well as being unable to walk, see or form cohesive thoughts (and I had absolutely no concept of time!) so I am eternally grateful for the amazing NHS staff and what they’ve done for me. I was given a round of plasma exchanges along with corticosteroids and over the next few weeks was back on my feet; seeing, walking, talking and understanding. At first, my Neurologist was considering either MS or ADEM, given the acute onset and the symptoms I had presented with. In July I was given a second MRI which showed two smaller, new lesions, so in August I was given a confirmed diagnosis of RRMS.
I’m due to start treatment with Tysabri in the next 2 to 6 weeks so I was hoping to gain some knowledge of what I should expect, with regards to how I’m likely to feel and how likely it is that I’ll be able to continue my day to day activities. Any information would be greatly appreciated!
I'm 26 and was diagnosed with RRMS in August. I’d never experienced any medical issues and had never been to hospital before, however at the beginning of May I was admitted to the Neurological ward with extreme symptoms and remained there for a month before being discharged just in time for my birthday. At the time I was at risk of entering a coma, as well as being unable to walk, see or form cohesive thoughts (and I had absolutely no concept of time!) so I am eternally grateful for the amazing NHS staff and what they’ve done for me. I was given a round of plasma exchanges along with corticosteroids and over the next few weeks was back on my feet; seeing, walking, talking and understanding. At first, my Neurologist was considering either MS or ADEM, given the acute onset and the symptoms I had presented with. In July I was given a second MRI which showed two smaller, new lesions, so in August I was given a confirmed diagnosis of RRMS.
I’m due to start treatment with Tysabri in the next 2 to 6 weeks so I was hoping to gain some knowledge of what I should expect, with regards to how I’m likely to feel and how likely it is that I’ll be able to continue my day to day activities. Any information would be greatly appreciated!
i have no xp w ms drug treatments but can recommend the tysabri specific treatment forum in case you don't get the response you're after out here in general. hope everything goes well overall.