DMDs & conceiving... sorry, long post!
Posted: Sat May 16, 2020 12:37 am
Hi everyone, hope you’re all as well as can be.
I was hoping some of you could share with me your thoughts and experiences...
I’m currently on tysabri, my infusions have been moved to 6 weekly and after the pandemic, my neurologist will change my medication completely. He has suggested gilenya and ocrevus. So, of course, I’ve been looking into them.
My partner and I were hoping to try for a baby soon, it would be our first and last together ( we both have children from previous relationships). My son is 6 and I came off tysabri while I was pregnant with him but I believe women are now often continuing on tysabri throughout pregnancy. I’ve read that it is not safe to conceive on gilenya or ocrevus and you need to be off these drugs for a time before you can even conceive. I don’t much like the idea of this
I feel like the best option would be to conceive while on tysabri, come off it while pregnant (don’t mind not bring on anything while pregnant as pregnancy is great for my ms, as it is for many ladies
) then start new treatment after baby is born. Although I do have some concerns about starting a new treatment With a newborn, not knowing how effective the new treatment would be.
Have any of you experienced having babies while on ocrevus or gilenya? How was it managed?
For those of you on gilenya and ocrevus, do they work well for you?
I’m sorry for the long post, my head is all over the place... I blame the broody hormones
Thankyou
Emi xx
I was hoping some of you could share with me your thoughts and experiences...
I’m currently on tysabri, my infusions have been moved to 6 weekly and after the pandemic, my neurologist will change my medication completely. He has suggested gilenya and ocrevus. So, of course, I’ve been looking into them.
My partner and I were hoping to try for a baby soon, it would be our first and last together ( we both have children from previous relationships). My son is 6 and I came off tysabri while I was pregnant with him but I believe women are now often continuing on tysabri throughout pregnancy. I’ve read that it is not safe to conceive on gilenya or ocrevus and you need to be off these drugs for a time before you can even conceive. I don’t much like the idea of this
Have any of you experienced having babies while on ocrevus or gilenya? How was it managed?
For those of you on gilenya and ocrevus, do they work well for you?
I’m sorry for the long post, my head is all over the place... I blame the broody hormones
Thankyou
Emi xx