Normal MRI?
Posted: Thu Feb 04, 2021 12:16 pm
Hi, I don't want to list all of my symptoms (would probably forget some anyway), but I will list what my PCP and neurologists have said is wrong with me.
First, it was trigeminal neuralgia; epilepsy (PCP). Next, it was ataxia (PCP). Then, possible MS (PCP and neuro) which quickly turned into conversion disorder. Most recently, it was neuropathy (PCP) and then it was epilepsy again with travelling paresthesias. Finally, it was labyrinthitis. I was given Keppra to take and told to keep taking it even though it did nothing for fatigue or dizziness. However, it made my muscles feel less tight.
I had an MRI in 2017 which showed lesions that the radiologist suggested demyelinating disease should be ruled out due to pattern and my age. At that time I was told that since my C-spine was clear it was not MS. Later in 2017/early 2018, I had another MRI and lumbar puncture. The report said it was stable, but said there were black holes. Lumbar puncture had only 2 CSF-specific O-bands, none in blood. Oh, and vitamins, Lyme, etc., etc., all ruled out. So, that's when I was told it was a conversion disorder, but I went a psychiatrist to rule that out which they did.
As you can imagine, I just stopped looking for answers until late last year. Mostly because I have issues with what I describe as sensory overload and have difficulty driving especially at night, and I want to get a job out of the home. Epilepsy with travelling paresthesias was his first diagnosis. Then, I had an MRI and took a disc of an MRI in to them. They told me they didn't have the software to read it! So, he used the report and basically said well the spots on your brain are probably these same ones they talk about. It's normal.
The problem I have is, the latest MRI report mentions several periventricular lesions and several in the corpus callosum and says MS related abnormality. The one before only mentioned subcortical lesions and cortical U-fiber enhancement.
I sent a message to his office via my patient portal asking if the ones he pointed out to me where in the corpus callosum or U-fiber areas. His assistant messaged me back that she talked to him and he said the MRI is normal, and that if I had more questions to schedule an appointment.
I know that Dr. Google is a terrible thing, but after my research it doesn't sound like corpus callosum lesions are "normal" for people without something going on with regard to the CNS. Does anyone have any thoughts or suggestions?
Thank you!
First, it was trigeminal neuralgia; epilepsy (PCP). Next, it was ataxia (PCP). Then, possible MS (PCP and neuro) which quickly turned into conversion disorder. Most recently, it was neuropathy (PCP) and then it was epilepsy again with travelling paresthesias. Finally, it was labyrinthitis. I was given Keppra to take and told to keep taking it even though it did nothing for fatigue or dizziness. However, it made my muscles feel less tight.
I had an MRI in 2017 which showed lesions that the radiologist suggested demyelinating disease should be ruled out due to pattern and my age. At that time I was told that since my C-spine was clear it was not MS. Later in 2017/early 2018, I had another MRI and lumbar puncture. The report said it was stable, but said there were black holes. Lumbar puncture had only 2 CSF-specific O-bands, none in blood. Oh, and vitamins, Lyme, etc., etc., all ruled out. So, that's when I was told it was a conversion disorder, but I went a psychiatrist to rule that out which they did.
As you can imagine, I just stopped looking for answers until late last year. Mostly because I have issues with what I describe as sensory overload and have difficulty driving especially at night, and I want to get a job out of the home. Epilepsy with travelling paresthesias was his first diagnosis. Then, I had an MRI and took a disc of an MRI in to them. They told me they didn't have the software to read it! So, he used the report and basically said well the spots on your brain are probably these same ones they talk about. It's normal.
The problem I have is, the latest MRI report mentions several periventricular lesions and several in the corpus callosum and says MS related abnormality. The one before only mentioned subcortical lesions and cortical U-fiber enhancement.
I sent a message to his office via my patient portal asking if the ones he pointed out to me where in the corpus callosum or U-fiber areas. His assistant messaged me back that she talked to him and he said the MRI is normal, and that if I had more questions to schedule an appointment.
I know that Dr. Google is a terrible thing, but after my research it doesn't sound like corpus callosum lesions are "normal" for people without something going on with regard to the CNS. Does anyone have any thoughts or suggestions?
Thank you!