This Is MS Multiple Sclerosis Knowledge & Support Community

Just curious if anyone might have some thoughts on this:

These are mostly persistent issues, with some fluctuations in severity depending upon a given day. They began increasing in the past 8-10 weeks, and quite frankly, a couple of them are alarming. These are pretty much 24/7 as of now:

Left side head discomfort; left eye and an area a couple of inches above my left ear, right as the skull curves.

Frequent urination; came on very quickly, and is 24/7. No accidents, just way increased frequency. Regular volume.

Spatial awareness and orientation. Everything FEELS off…like I’m a millisecond behind normal, or something. I’m outdoors working on my property and I accomplish my normal tasks, but nothing seems normal now. Even light is different.

Balance and walking. Having moments when I feel like I could fall, but I don’t feel dizzy. And when I’m walking, it now feels like I’m leaning to the left. Very odd stuff.

Sudden shallow breath and short cough. Very odd, because I have great lung and heart health from staying active. I can breathe fine, but sometimes it feels like I’m not breathing deep, although I can make myself do so.

Spasticity issues, mainly in shoulders and arms.

Weakness/heaviness in legs.

If it matters, I suffered head trauma and spinal injuries, in a parachute accident years ago. In late September of 2019, I began developing neurological problems, and was MRI diagnosed with Adhesive Arachnoiditis @L3. Spent the next 3 years working on controlling the inflammation, and mostly got the severe pain in a manageable area. I don’t use pain meds, only diet, supplements and light exercise.

In 2021, it was suggested that I get multiple EBV lab tests and I did; I was told that I had EBV Autoimmunity, after ALL of my different labs came back maxed out.

In October of last year, I suddenly became ill, but not like a cold or flu! I’m talking about a serious physical attack, that began about 2030, and really slammed me about 0300. That was just day 1, and I went through 174 days, with 2-3 week breaks between multiple symptoms. And up to now, it just keeps attacking, backing off and then subtly changing.

So, I’m interested in anyone’s thoughts on this; please feel free to ask me questions. Many thanks!

Hi,
Go see a neurologist. What you've described may or may not be symptomatic of something, but the tests will determine that. Don't take the assurances of a local doctor. As a rule, they aren't much good at this sort of issue.
It is far better to investigate properly rather than guess.

Regards,

Thanks. I have a PCP, who doesn’t believe in anything other than heart disease; I asked him to order a FLAIR MRI, but he said he didn’t think I need it. I found a MRI facility somewhat near me, that will allow me to pay out of pocket, but they still require a referral…always a Catch-22. I have have 8 people on my case, including 2 with MS, all telling me they really think I need that FLAIR MRI…if for no other reason, to see what’s going on up north.

I have a full spine MRI every year, but never on the head; they have done CT scans in the past.

As for a spinal tap, that could be problematic for me, as my AA mass, is located in the L3 area.

Well, I appreciate your help and advice, Scott.

Welcome to ThisIsMS AA20MS25. It sounds like you have several neurological symptoms. I second Scott1's recommendation to see a neurologist. If your current PCP won't give you a referral, then it's likely time to find a new PCP.