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Just when I was doing so well...

Posted: Tue May 06, 2008 6:15 pm
by Nenu
Ugh. So I started to clean my house today, throwing stuff out, organizing... I knew I felt fatigued after I was done the work, so I decided to stay cool and just relax for the rest of the day. I noticed the burning mouth thing was worse, that the pain in my neck was worse, etc.

Come tonight when I can honestly say, it feels like I'm relapsing. I spoke to my realtor by phone about the home inspector situation (they were to come tomorrow) and he didn't know when they were coming. So I went from a situation where I had expected the home inspector Tuesday, they couldn't come Tuesday, now they're unsure when they're coming, I'm in limbo because I made an appointment with the super for the apartment to meet Wednesday at 6 pm expecting this home inspection thing to be done, now it's not going to be ready. They want in this house on the 26th of May. I accommodated the request, now I'm working on an extremely tight schedule, especially with this new development.

I can't help the stress now, and tonight walking down the road, I could see the double vision coming on, the burning mouth getting worse, and I feel shaky and can't calm it down. So is this indeed a relapse? I just had 6 days of steroids at the end of Feb/beginning of March and then the tapering off period. Is it unlikely that at the beginning of May I'd already be in relapse? I never did begin my Copaxone yet, because I have been waiting to hear about the financial assistance (finally got the approval), and with the house crap haven't been able to have the nurse in to show me the ropes.

Oh, and I can feel the hug coming back tonight... :(

Halp! Where do I go from here? My GP or Neuro? I feel like nothing was explained to me as far as what to do in the case of a relapse, or what to expect in a relapse.

Posted: Tue May 06, 2008 6:28 pm
by jimmylegs
that's rough nenu!!!! ouch. :(
i know it's beating a dead horse but see if you can get your hands on a bottle of magnesium to see if it knocks off some of the pain, hug, burning. magnesium is even needed in the optic nerves. if you take 600mg each night on an empty stomach, away from all the interactions of your compound and other supplements, it might help some.
as far as it being a relapse, this i don't know. i know i lose it a bit when i exert myself but once i cool down again, i'm back to regular old lame.
i think it's a totally personal call whether you get in touch with the gp or neuro first. sorry you're having a rough one. i just moved too and it really does suck!!!

Posted: Tue May 06, 2008 6:35 pm
by Nenu
Yeah, I don't know.. as I sit here, I can also feel my hands going numb. This does indeed suck!

I do have magnesium pills kicking around here, which I could take. I was told previously to take 2 600mg Magnesium Glycinate (20% magnesium apparently) before bed. 1 in the morning. So it's something I could try and see if that helps.

Posted: Tue May 06, 2008 6:48 pm
by jimmylegs
sounds like a good idea nenu hope it does something for at least one of your yucko issues this eve. 1200 at once sounds like so much to me, but glycinate that's the really good one for absorption isn't it. pah now i have to go take my own medicine ;) my throat's been acting up today

Posted: Tue May 06, 2008 7:08 pm
by Nenu
To be honest, I grabbed a bag of Nibs, my trusty coffee and I'm going to log on my MMORPG I play and kill some people. That'll hopefully make me feel better ;)

Posted: Tue May 06, 2008 9:26 pm
by Nenu
Yay found my magnesiums and took 1 (figure since I have 360mg in my compound, 1 600mg @ 20% is a good starting point). Maybe this will help.

Posted: Wed May 07, 2008 5:08 am
by jimmylegs
hope that all your options worked together to give you some relief :D

Re: Just when I was doing so well...

Posted: Wed May 07, 2008 7:42 am
by Lyon
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Posted: Wed May 07, 2008 10:42 am
by Nenu
Thanks Bob :) I spoke with the Shared Solutions nurse today, who did say almost the same thing... she indicated that a 'relapse' would be new lesions. Of course I'm not going to rush in for an MRI :) Definitely taking it easy today and not letting things get to me, but pending tstorm here has me antsy.. I hate these things! :p