At the request ot Arron,I am starting a new thread tracking my antibiotic progress (or lack of it!)
I'm 42,an actress with 2 boys aged 9+10 and i live in London with my theatre director husband.
I was dx in 1987 after a weak left arm made work a bit more difficult.and after an MRI scan, was told i had M.S. in my local Casualty.Smashing.
I was given bottle of steroids and sent on my way with a"Good Luck".
This cleared up rapidly,but my father was dx at around the same time! As i felt comletely normal,I kept my dx quiet to protect them.
The next 14 years were really very normal-I had a tingly hand every 18 months or a numb foot here and there which always resolved itself and never stopped me working in the West End.
However in late 2001,walking started very slowly to get a bit harder,but after a rest and a cup of coffee, I felt fine again.
Eventually,I saw a top neurologist who told me I had probably become SPMS and again offered steroids and not much else.I was told I was "in denial" when I dared ask if the steroids would make my face look fat and sent on my way.
My father was worsening rapidly( dementia,doubly incontinent,had to be fed through a tube) and he finally died in Jan 2003 from a heart attack and pneumonia.
I tried not to panic and carried on living to the very best of my ability,though walking a long way was getting pretty hard.
I gave up work and was lucky enough to be put on the informed consent trial of Aimspro which was quite good sometimes but not good enough for my liking.
I stumbled upon this incredible site and Dr David Wheldon's very sane ideas,and so got myself in the car to see him at Bedford to be put on the antibiotic regime.
My G.P. was very helpful with my private prescription from David,and I only had to pay for one of the three antbiotics ,Roxythromicine, which I take twice a day along with Doxycycline.
I have been on them 10 days now along with the usual supplements(I'm rattling) but my skin looks great!
My symptoms definitely started worsening after about 3 or 4 days but last Wednesday( 7 days in ), I suddenly felt fantastic-my dodgy right leg felt much stronger again ,and I was flooded with confidence.
Unfortunately ,the next day,I felt worse again,so I have no idea what that "good day" was about.
I'll keep you posted each week if you can bear it
but I have a good "gut-feeling" about all of this.Thanks for letting me ramble on a bit ,people like Anecdote (David's wife) are my inspiration behind all this and they will never know just how grateful and lucky I feel.
Keep well and happy all of you
Debbie xx
