Hi New Here.

Shaka · Post by **Shaka** » Fri Aug 07, 2009 8:01 pm

Hello, I was Dxed with MS 5 years ago also tested Positive for Lyme at the same time. So far I have had 8 positive lyme tests and just found out I also tested Positive for CPN 2 years ago.

It has been a battle to get antibiotics no Dr in Oregon believes in my Lyme. I have travelled to Conecticut and California to see Drs to get antibiotics.

3 years ago I got IV Rocephen for 90 days and improved greatly. My MRI at that time showed almost no more lesions. I stayed on low dose antibiotics had a baby. She is 1 now and so far shows no sign of Lyme. A few months after I had her, I stopped antibiotics thinking I was better I had been symptom free for 2 years.

Boom it came back with a force. I have all new spine and brain lesions making walking very difficult. My nuero would not even consider trying antibiotics again even though they had worked so well.

So back I fly to Conecticut and the Nuero notices a Positive Clamydia Pnemanue test from 2 years ago. He now thinks that is my bigger problem over Lyme. He has put me on the Stratton/Vanderbelt Protocol for now and if my Lyme tests are still very positive propably 90 days IV antibiotics.

I am excited that I found a forum that seems open to MS, Lyme, CPN, and Antibiotics. I feel like I don't belong on anyother MS board.

My biggest problem now is trying to stomach Minocycline. I took Doxy for over a year in the begining and it did not end well with my stomach. Not sure what helps with stomach problems. I always take good probiotics.

Thank you for reading.

agatha · Post by **agatha** » Sat Aug 08, 2009 4:28 am

Welcome Shaka

Your story is very interesting - I can't believe the neuro wouldn't do the ABX even though they had been helpful before - how rubbish is that!

Hopefully you'll quickly get back on track now. I'm sorry I'm quite new so I've no ideas about your stomach - I guess some of the others will have some suggestions though.

with every good wish
Agatha

SarahLonglands · Post by **SarahLonglands** » Sat Aug 08, 2009 6:00 am

Hello Skaka, the best thing to help you if you are having stomach problems with doxycycline or minocycline is a glass of milk. Also I never took doxycycline without eating because it didn't suit me at all. You shouldn't take calcium supplements at the same time but a small glass of milk is fine.

Sarah

Shaka · Post by **Shaka** » Sat Aug 08, 2009 4:53 pm

Thank you. I will try milk would soy milk do the trick. i only like cows milk in my cereal.

notasperfectasyou · Post by **notasperfectasyou** » Sat Aug 08, 2009 6:02 pm

Welcome Shaka!

There's a good bit about stomach issues here at TIMS. I don't know about Doxy since my wife takes other ABX that upset her stomach. The stomach emergency kit is Tums. we also found Nori helpful.

Ken

SarahLonglands · Post by **SarahLonglands** » Sun Aug 09, 2009 3:30 am

i only like cows milk in my cereal.

Well, I don't know if soy milk would work, you would have to try it, but how about taking it with your cereal? (David says soy should work.)

Sarah