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Hello
Posted: Thu Dec 03, 2009 11:52 am
by tld723
Hello! I just wanted to introduce myself. I am 45 y/o chicklet recently diagnosed with RRMS. I've probably had it for quite a while.
My primary symptoms are numbness in my feet and legs and left hand, I am as clumsy as they come, and the fatigue has been ruthless.
I am currently taking Prednisone and I actually for the first time in I don't know how long feel wide awake past 2:30 in the afternoon.
Thanks for this wonderful site, and for having me:)
Tami
Posted: Thu Dec 03, 2009 1:25 pm
by jimmylegs
welcome to TIMS, tami!
Posted: Thu Dec 03, 2009 7:13 pm
by Johnnymac
HI Tami! I know what you're talking about. When my wife was first diagnosed they put her on a 5 day intravenous steroid treatment and it was amazing how much it helped as she was having a pretty bad exacerbation....glad you're feeling better, the little things are worth celebrating!
Posted: Thu Dec 10, 2009 10:06 pm
by SandyK
Hi tld723. Steroids are a necessary evil in this disease. I have trouble when I'm on Prednisone at less than 10 mg. I feel really sad and hopeless. Thankfully, that feeling goes away. Welcome to the party!
Posted: Tue Dec 15, 2009 5:05 pm
by Vhoenecke
My Neuro says that steroids can cause really bad affects to the body later on. I chose not to go that route maybe I was wrong. I found out about Modafinil from a cousin-in-law with SPMS, I have RRMS but have crazy bad fatique. This is a drug for people with Narcolepsy(SP?) It seems to really work for me, keeps me awake without that hangover feeling. It is a non-addicting drug as well. Just an FYI not trying to be a drug pusher or anything.
Posted: Tue Dec 15, 2009 6:19 pm
by SandyK
Vhoenecke, there is no wrong choice in this game. I don't have fatigue so that's not a drug I ever heard of. As long as you do what works for you you're doing perfect!