This Is MS Multiple Sclerosis Knowledge & Support Community

Hello-I am a 43 year old woman living in Chapel Hill, North Carolina. I've been diagnosed for 13 years, but just found this website. I am presently mostyly in bed due to a flare-up. I have a six year old boy and am recently separated from my husband. I discovered this sight looking for info on CCSVI--
I also have an essay titled "What the People Don't Know" published in the collection: The Voices of MS by LaChance publishing. This is a great sight, thanks for all the good work.

Judi

Hi Judi,

I looked up your essay in The Voices of MS. I need to get it at Borders, hopefully this weekend. I live in Pittsboro and am very excited about CCSVI. Hopefully, it will gain traction in US in spite of the phama/biotec and general nero resistance to this. It's not a $$$$ drug so it can't work.

Jim

Hi Bear (Jim)--I was hoping I'd meet someone local through this site. I don't frequent the local support groups. I think we can do some really proactive things to help CCSVI move along. I published a letter to the editor in today's edition of the Chapel Hill News, and I've written a letter to Rep. Price. I also had an email from a vascular surgeon at Duke who said he's working on getting the procedure started there.

I'm going to schedule an appt. with my GP and see if I can get her to get me tested for vein occlusion? What I've read on this site is that they'll test for it if you don't present it for MS--headaches, swelling etc...

I'm coming out of a doozy of a relapse, thought I was a goner there for a minute...but I'm doing better now that the winds have shifted. It's crazy how my MS follows the weather--closely.

So nice to hear from a local MSer, and thanks for the interest in my essay. The publishers LaChance Publishing are really great folks. Let's stay in touch. Judi

Judi,

I finally received "The Voices of MS". I had to order it as Borders only has it via mail order.

Your story was Very Good. I have read a few so far, tear jerkers as I am so emotional these days.

Jim

Hey Jim--Thanks for the comments on my essay. I'm just swinging into the new year and was cleaning out my email and saw I had a response on this site. I hope you are well and staying warm. I am loving this clear, crisp, weather. The cold doesn't bother me as long as there isn't a heavy cloud cover with it. I have a 10:30 acupuncture appt. today--they're giving me treatments for my neck veins and barometric pressure. I was pretty down and out for most of November/December--but now my energy, walking and balance are good---I even went to the gym after dropping my son off at school. How's that for the new year?

How's your health? Do you want to meet for tea? Judi