Hi All
Posted: Thu Jan 21, 2010 11:09 pm
Hi all
I've had SPMS since 2002-officially. weird unexplained stuff before that. EDSs 3.5 significantly better in the last 2 yrs! I've been on lisinopril that time (for HBP)- maybe it is helping. ( Google: Lawrence Steinman lisinopril) Otherwise I get solumedrol I call it granny speed.
I use a really cool scooter and cane . that keeps my spirits up in the mean time. (I like them because it gives the able bodied a way to talk to me normally)
I'm a science nerd- willing to take risk- but only in a proper clinical trial. That is the only way to really make progress for large numbers of patients.
I've just signed up for a stem cell study at UCSF. Nervous about the lumbar punch but willing to submit my body for torture if it helps find a cure. That includes a good clinical trial for CCSVI. Hoping Dr Dake takes me in his next study too. Will go to Buffalo -if I'm accepted there.
I've been inspired by the stories posted by the pioneers I've read about here.
Thanks You guys. SO MUCH.
looking for 5M miracles from Saint Zamboni's work.
I've had SPMS since 2002-officially. weird unexplained stuff before that. EDSs 3.5 significantly better in the last 2 yrs! I've been on lisinopril that time (for HBP)- maybe it is helping. ( Google: Lawrence Steinman lisinopril) Otherwise I get solumedrol I call it granny speed.
I use a really cool scooter and cane . that keeps my spirits up in the mean time. (I like them because it gives the able bodied a way to talk to me normally)
I'm a science nerd- willing to take risk- but only in a proper clinical trial. That is the only way to really make progress for large numbers of patients.
I've just signed up for a stem cell study at UCSF. Nervous about the lumbar punch but willing to submit my body for torture if it helps find a cure. That includes a good clinical trial for CCSVI. Hoping Dr Dake takes me in his next study too. Will go to Buffalo -if I'm accepted there.
I've been inspired by the stories posted by the pioneers I've read about here.
Thanks You guys. SO MUCH.
looking for 5M miracles from Saint Zamboni's work.