My name is Craig and I am 39 years old. I was diagnosed with MS on my 30th birthday, even though they could trace it back to 1997.
After failed attempts on conventional treatments- the ineffective Rebif, to be precise- I started on LDN in 2009 with improved my symptoms immensely... at the beginning.
Last year, I stumbled upon the Wheldon Protocol- Sarah's story- and informed my GP I would like to try it. He wanted nothing to do with it. So, in October 2013, I ordered the antibiotics myself.
In November, I was ready to rock n roll! My enthusiasm was sky-high and I think this is where I have gone wrong...
After reading LOTS of info from David 's website and this site, I had the protocol, supplements and timelines memorised, so I started the protocol immediately. I started on 100 Doxy, which I tolerated well in conjunction with the NAC, and after a week, I was up to 200 Doxy. Delighted with my tolerance, 250 Azith was being taken with very little, if any, side effects. Now, in early December, 2013, and probably with false optimism, I began my first pulse. I managed the 5 days but the die-off was starting to take hold with side-effects. I felt very down and my appetite was taking a big hit. BUT, my symptoms were improving. I reserved judgement, because I have had so many false-dawns, but by February, and after 3, 5-day pulses, the improvements were undeniably down to the antibiotics.
So, why do I need advice? Well, now after almost 6 months on the protocol, I am struggling to tolerate it!
My first question is, have I gone in too quickly and too hard? Am I able to pull back a bit on the leash and maybe start again on the pulses 1 day and then 2 days next month, like what is advised? I just don't understand why I'm suddenly throwing up, not eating and struggling sleeping with the return of some of my old symptoms? I fear my impatience has ruined it for me or can it be salvaged? Maybe, I'm just harbouring a separate infection and that is why I'm suddenly ill?
If you need anymore info, or you want to know more of my story or symptoms or how I was improving, I'd be more than happy to disclose. Not just for my benefit, I mean, but to give other people a nudge who are thinking about trying it or need lift if you are struggling.
Thanks in advance and what a brilliant group you are. I've read a lot of your stories and posts and your support to people is priceless.