A forum for the discussion of antibiotics as a potential therapy for MS


Postby mom10789 » Wed Sep 05, 2007 5:45 am

i gotta tell you,i have a whole respect for the people that have done abx protocal before me
at least i have people to talk too
i was dxd in 2001 floated along till july 1 2005, when my world fell apart
my left hand and foot went numb, my neor decided to put me on iv steroids and taper me off too quickly, the nurses called it a 'prednisone meltdown' they had to admit me to the hospital and redo the process again
that was when i found out ms was painful
my daughter got married june 2006, i was so strung out on morphine,codiene,gabapentin,baclofen and zanaflex i hardly remember it
when we got the pictures back,that was it i stopped all ms drugs and all pain meds except for ibeprofen and mj
jan 2007 my bladder did not work well so was put on some drug that started with a d
have struggle with uti's ever since till july when my body became septic and my kidneys shut down
since starting doxy no more uti's, my kidneys are back to normal and life was pretty good
i guess that was why i freaked when NAC caused so much pain so i'm gonna listen to sarah and take a break from NAC
pain is my biggest ms problem so i'm gonna take this protocal really slooooow and probably whine alot
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Postby sojourner » Wed Sep 05, 2007 6:14 am

I have a lot of respect for this lot as well. I am just a bystander and have observed keenly some of these experiences when MSers take antibiotics.

The WOW in your title I can relate to because this is exactly what I have said over and over again when my husband experiences what you are describing----this uncharachteristic reaction to abx (or NAC or both). From earlier experiences in life, I only ever knew abx to make one feel better, and right quick at that.

I now consider these reactions as diagnostic. It is a sure sign that if one has these unusual experiences, killing is ongoing and eventually you'll turn the corner.

I dislike hearing of you suffering, but you must know this is a good sign. I agree with the others....go as fast as you can while not making treatment intolerable.
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Postby SarahLonglands » Wed Sep 05, 2007 7:32 am

Shell, I floated along for twenty years until my world fell apart as quickly as it took to wait in a post office queue. When I had finished I could hardly move. I was so gone mentally that I thought the sensible thing was to phone up my husband and ask him to bring down my bike so that I could cycle back home.

One thing, though, I have never been in pain, thank goodness. So do take a break from NAC. Its only essential in the later stages, when you are thinking of stopping full-time abx, to help guard against re-infection.

You doc said you looked a lot better, I said you were sounding better, your utis have stopped, so you're on your way!

Sarah :)
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby Katman » Thu Sep 06, 2007 7:13 am

Hi Shell,

For me, it was 9 years of floating along before some great indignities and misdiagnoses, wondering why I was tripping a lot, and not realizing I was becoming more and more foggy. I have no time today, but have to say very happy to meet you and yes, for some of us there is pain, but eventually it will get better and probably go away for good. Stay with us - we will cheer!

2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to  flagyl. 90% normal good days-50% normal bad days. That is a good thing.
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Postby mom10789 » Thu Sep 06, 2007 9:43 am

i had to laugh yesterday i had no idea what you were talking about at the post office my husband told me and i said no way sarah would have said a line-up
thankyou so much i'll stick with it,i'm just putting NAC on the shelf for a while i'm back to normal pain now instead of agony i can move my right hand and arm again so that's better
thanks again shell
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