5 days of doxy

A forum for the discussion of antibiotics as a potential therapy for MS

Postby MacKintosh » Sat Sep 26, 2009 8:04 am

robbie wrote:no cats here, it's been two years or more since i've been able to use a walker even for just a couple steps.


And you DOUBTED us! You're doing swell.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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Postby Minai » Sat Sep 26, 2009 11:42 am

Wow, Robbie! That really is big for you! Congrats...Doxy had the same effect for me, until I started the Azith. Switched to Roxy, which was much better. Wishing you the best in contiuing your progress. :)
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Postby Bubba » Sat Sep 26, 2009 8:26 pm

My heart is with ya Bro!! Keep it up!!
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Postby scorpion » Sun Sep 27, 2009 7:03 am

Yes! Yes! Yes! Congrats Robbie!!!!!!
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Postby Needled » Sun Sep 27, 2009 7:50 am

Robbie, This is great, just great! I'm so happy for you. I hope you continue to improve. But my gosh, all this after just 3 weeks -- amazing!! I popped in here a couple weeks ago to check on you, and you've made so much progress. Keep at it, and keep those videos coming if you can.
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Postby carolew » Sun Sep 27, 2009 7:55 am

congratulation Robbie. I am impressed. Keep up the good work. Hope you continue to improve...lots.... Carole
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Postby Loobie » Sun Sep 27, 2009 8:35 am

I have no words Robbie. You and I have had many exchanges over the years and I feel really close to you; kindred spirit type of thing. It just made me cry and I had to get my wife and show her this as she keeps up with this site by proxy and she started crying too. Damn I hope you keep improving. You look real good dude. I am sooooooooo happy for you Rob, beyond words.
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Postby lyndacarol » Sun Sep 27, 2009 9:01 am

Rob, I am so happy for you; your ability to use the walker after two years of inability is outstanding!

Disregarding the change you have made (DMD's, antibiotics, hormones, supplements, diet or insulin reduction, etc.) that you think is responsible for your improvement, the fact is you HAVE improved. For this reason (and all the other "miracle" stories), I doubt all the talk about "permanent" damage; I begin to think the lingering inabilities stem more from muscle tone than nerves.

In my own case, I think my lack of muscle tone (hypotonia) is a great contributing factor. I encourage you to exercise as much as possible. All the best to you!

(By the way, I think the intention tremor that I and many others experience is the direct result of a muscle problem -- dystonia. In my opinion, muscles play a major role in MS.)
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Postby robbie » Sun Sep 27, 2009 10:40 am

thanks for your support everyone, iwill keep trying to improve, part of me yes yes and part of me says no this is impossible.will wait a couple more weeks and do another video and hopefully get a little strengh back in the mean time.
Had ms for over 19 years now.
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Postby Katman » Sun Sep 27, 2009 10:44 am

Robbie

It was only on the second reading that I realized this was a video and not a photogragh.

Five years ago, I was very nearly in that position - I had gone from a cane to a walker and was trying in my befuddled mind to figure out how I was going to get from here to there, whereever those places were - hopefully not too far. Now, not only is the wheelchair gone from the horizon, but the everyday walker and, before that, the cane are gone. We, with you, can do this! You have the groundwork laid for a really good start. How is your Vit D level? You have a large cheering section. I am so, so happy for you!

Rica
2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to  flagyl. 90% normal good days-50% normal bad days. That is a good thing.
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Postby SarahLonglands » Sun Sep 27, 2009 11:00 am

Robbie, when I first started this I just so didn't believe that it would work that David had to really make sure that I took all the doses.

Do try to do a little every day and you will gradually build up your strength. I have been there too and I do remember standing at one end of a room, wondering how I was going to get across: not wanting to use a walker I would slowly drag myself around the room, grabbing hold of anything immobile.

I am so happy that so many people have come to support you!

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby viper498 » Sun Sep 27, 2009 3:08 pm

Robbie,

I share the same feelings everyone else has, I had no audio on my computer and still got choked up watching that. It seems like triumph to me. I am very happy for you. I hope you only continue to improve. I am glad that ABX appear to be working for you after all even if it wasn't minocycline that did the trick.

Best Regards,
Brock
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Postby Lyon » Sun Sep 27, 2009 3:26 pm

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Last edited by Lyon on Sat Nov 26, 2011 10:05 am, edited 1 time in total.
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Postby bibliotekaren » Sun Sep 27, 2009 9:55 pm

Robbie,

Today was my first visit to TIMS in a while as I've been sidetracked taking care of another health issue. The video took my breath away -- I'm so glad to see this! Wish you the best for continued improvement and reclaiming some of Robbie!

Donna
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Postby CureOrBust » Mon Sep 28, 2009 5:11 am

You have hidden this, yeah, I know, in the correct forum, but congrats!
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