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PostPosted: Mon May 20, 2013 11:32 am 
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Joined: Mon May 20, 2013 11:21 am
Posts: 1
I am on month 5 of aubagio (used to take avonex). Everything was great until my hair started shedding! I am freaking out about it. I called Genzyme and all they could tell me was that for "most" people it eventually grew back. No other data available. It is not coming out in clumbs - just shedding all the time. I have very long hair - but my brush is full every 2 days! Anyone else have this side effect? When will it stop? When will it grow back? Did you continue with the pill or switch? What did your docter said - I think my doctor may be a little clueless given this drug is so new. Any info would be great!


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PostPosted: Mon May 20, 2013 5:04 pm 
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Joined: Wed Jul 27, 2005 3:00 pm
Posts: 2687
Location: Sydney, Australia
I am not on this, have no special knowledge about it, but a random thought/ponder.


I had a male friend who was suffering from going bald naturally. He tried Minoxidil (Rogainetm) and you could see the difference big time. My understanding of how it works is not by growing new hair, but by stopping hair from falling out. Talk to your doc and maybe give it a try. Make sure to talk to your doc even though its available without a prescription, as my friend said he was growing hair everywhere, so it obviously got into his blood (he was only rubbing it on his scalp).


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