Hi to the avonex newbies
I have been on it for more than 2 years now - the good news is it definitley seems to have helped my ms, the bad news is...my side effects have certainly dimished, but I still get pretty layed-up for 24 hours aftrwards, & I take whopping doses of ibuprofen (have experimented with many different drugs for the side effects).
But what I really wanted to say is - NHE is my avonex guru, he has held my hand through some difficult times with the treatment, and his advice has proved to be invaluable. He is a great support and a fount of knowledge and experience - if you have problems or questions, ask him, he is always so willing to share his experience and he has been around the avonex block a time or two...So, post your question or problem here, or ask for some support - he is great
NHE, I dont mean to embarrass you, but you have always been so amazing, I just wanted them to know that you keep an eye on this forum and have so much experience to offer with avonex in particular - I would have stopped it after 6 months if you had not helped me deal with the side effects - my neuro did not take it seriously at all, if you remember, and I got so ill I wished to just curl up and die!! You gave me a whole bunch of tips that made it bearable. I guess I am one of those people who react strongly to it so will always feel crappy (most are not like me), but whew, what an improvement with your input...I am rambling, it is late at night, so will quit before I get really irritating!
All the best guys - stick with it, dont hesitate to post here, and talk to your docs if you are worried at any time.
