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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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annbbe
PostPosted: Sat Jan 30, 2010 10:13 am 
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Hi! I was in Zabrze yesterday. I had my MRV done. The last step is february the 2nd: i am going to have my liberation procedure.

I am happy, but I am a bit nervous too. I don't know if I can count on anything.

My state now: 4-4,5 EDSS, huge balance problems, strong ataxia, left side of the body weaker.

On Monday I go to Katowice (I live in Warsaw), and the next day everything starts....

I really hope thing would change for the better, but I am a bit afraid too...
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fiddler
 Post subject: Good luck!
PostPosted: Sat Jan 30, 2010 10:16 am 
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Location: Fredericton, Canada
I hope everything turns our fantastically for you. Then February 2nd will be the first day of your new life. Tell us how everything went after you are feeling well enough to do it.
...Ted

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Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
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ozarkcanoer
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PostPosted: Sat Jan 30, 2010 10:18 am 
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annbbe, I assume that Dr Simka and Dr Ludyga are your team ? If so, they have the most experience with the procedure aside from Dr Zamboni and Dr Dake. I hope for the best outcome for you. Keep us informed !

ozarkcanoer
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annbbe
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PostPosted: Sat Jan 30, 2010 10:26 am 
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Hey, yeah, I'll let you know everything:) My doctor is dr. Simka, sooo I think dr. Ludyga would work with him.

:)

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Polish, 30yrs, dx 2000 RRMS, EDSS 5.

liberated in february the 2nd 2010:). Currently on double blind clinical trial with Avonex/Daclizumab.
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colmmc
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PostPosted: Sat Jan 30, 2010 10:48 am 
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Our hope's & prayers are with you.
Be strong we are all with you.

colmmc


Last edited by colmmc on Sat Jan 30, 2010 11:16 am, edited 1 time in total.

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INONU
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PostPosted: Sat Jan 30, 2010 10:53 am 
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HI!! annbbe

Be strong and I am sure all things will be OK.My heart with you.Good luck

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my daughter ms'patient since 2001
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seanthecaper
 Post subject: Good Luck Annbbe
PostPosted: Sat Jan 30, 2010 11:10 am 
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You are in very capable hands with the two best experienced doctors in the liberation procedure.

I hope things improve post surgery and a new quality of life emerges from this.

That's all any of us have ever asked for.

God Bless.
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wonky1
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PostPosted: Sat Jan 30, 2010 11:21 am 
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Hi Anne
Please don't be afraid or nervous, you will be in excellent hands.
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sunlounger
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PostPosted: Sat Jan 30, 2010 11:58 am 
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Hi annbbe
so pleased for you :D
be thinking about you next week
best wishes :D
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Katie41
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PostPosted: Sun Jan 31, 2010 12:49 am 
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How wonderful for you! Take a deep breath and smile :D You are in good hands.
Katie41
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robin50
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PostPosted: Sun Jan 31, 2010 1:44 am 
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hallo annbbe

whish you good luck and best greetings from your neighbur country...

watch all these libertion tests and- or operations with high interest...

again, my best regards !!!

Robin
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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