february the 2nd = annbbe has the procedure!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

february the 2nd = annbbe has the procedure!

Postby annbbe » Sat Jan 30, 2010 10:13 am

Hi! I was in Zabrze yesterday. I had my MRV done. The last step is february the 2nd: i am going to have my liberation procedure.

I am happy, but I am a bit nervous too. I don't know if I can count on anything.

My state now: 4-4,5 EDSS, huge balance problems, strong ataxia, left side of the body weaker.

On Monday I go to Katowice (I live in Warsaw), and the next day everything starts....

I really hope thing would change for the better, but I am a bit afraid too...
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Good luck!

Postby fiddler » Sat Jan 30, 2010 10:16 am

I hope everything turns our fantastically for you. Then February 2nd will be the first day of your new life. Tell us how everything went after you are feeling well enough to do it.
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
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Postby ozarkcanoer » Sat Jan 30, 2010 10:18 am

annbbe, I assume that Dr Simka and Dr Ludyga are your team ? If so, they have the most experience with the procedure aside from Dr Zamboni and Dr Dake. I hope for the best outcome for you. Keep us informed !

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Postby annbbe » Sat Jan 30, 2010 10:26 am

Hey, yeah, I'll let you know everything:) My doctor is dr. Simka, sooo I think dr. Ludyga would work with him.

Polish, 33yrs, dx 2000 RRMS, 2013 RSPMS EDSS 6.

liberated in february the 2nd 2010:). Currently just on LDN.
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Postby colmmc » Sat Jan 30, 2010 10:48 am

Our hope's & prayers are with you.
Be strong we are all with you.

Last edited by colmmc on Sat Jan 30, 2010 11:16 am, edited 1 time in total.
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Postby INONU » Sat Jan 30, 2010 10:53 am

HI!! annbbe

Be strong and I am sure all things will be OK.My heart with you.Good luck
my daughter ms'patient since 2001
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Good Luck Annbbe

Postby seanthecaper » Sat Jan 30, 2010 11:10 am

You are in very capable hands with the two best experienced doctors in the liberation procedure.

I hope things improve post surgery and a new quality of life emerges from this.

That's all any of us have ever asked for.

God Bless.
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Postby wonky1 » Sat Jan 30, 2010 11:21 am

Hi Anne
Please don't be afraid or nervous, you will be in excellent hands.
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Postby sunlounger » Sat Jan 30, 2010 11:58 am

Hi annbbe
so pleased for you :D
be thinking about you next week
best wishes :D
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Postby Katie41 » Sun Jan 31, 2010 12:49 am

How wonderful for you! Take a deep breath and smile :D You are in good hands.
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Postby robin50 » Sun Jan 31, 2010 1:44 am

hallo annbbe

whish you good luck and best greetings from your neighbur country...

watch all these libertion tests and- or operations with high interest...

again, my best regards !!!

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