A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Cece » Wed Feb 03, 2010 12:09 pm

Hey, if anyone understands the necessity of breaks (or mandatory rest periods), it's MSers!!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby Mechanicallyinclined » Wed Feb 03, 2010 12:27 pm

You take care Joan! There's alot starting to happen now and we surely appreciate all the effort you put into this!
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Postby HappyPoet » Wed Feb 03, 2010 1:21 pm

Best wishes, cheerleader. You're the best!

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Postby youbetcha » Wed Feb 03, 2010 1:31 pm

Thanks for everything....all the best to you and your family.
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Postby thisisalex » Wed Feb 03, 2010 1:44 pm

all the best Cheer, and please do come back!

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Postby PCakes » Wed Feb 03, 2010 2:15 pm

Cheer, ... Thank you so much for everything.. especially your watchful eye and sensible guidance. You will be missed. Good luck!!
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Postby Johnson » Wed Feb 03, 2010 3:13 pm

Odd, because I was thinking of you and your efforts here just before i logged on and saw your message. (I was wondering how long you could keep it up)

I hope that there is nothing critical for you to deal with regarding your family. I can't think of a better advocate for your family than you. Best wishes.
My name is not really Johnson. MSed up since 1993
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Postby sonia52 » Wed Feb 03, 2010 6:44 pm

Thanks a lot Cheer and best of lucks!
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Postby catfreak » Wed Feb 03, 2010 7:35 pm


You are the one my husband calls our ANGEL!! You gotta do what you gotta do!! Take care if the family and yourself first.

We will be here when you come back, promise!!!!

Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby pgm1 » Thu Feb 04, 2010 1:49 pm

Hi cheerleader

Thanks for everything and i wish you well

Pam :)
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Postby Ruthless67 » Thu Feb 04, 2010 9:49 pm

Hi Joan,

What a treat today to read the BNAC Volume 1 Issue 1 Newsletter, it is indeed a Red Letter Day! How can we all possibly Thank You enough for bringing Dr. Zamboni's work to Stanford and then on to the Canadian TV. I and all MS'ers owe you a huge debt of gratitude.

Also, just wanted to mention that there are some really informative articles in this months US News & World Report. An awful lot of good info on how to age well. I only wish I could have read a couple of the other articles in the magazine before I had to make a decision on Nursing Care for my mother.


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Postby Rose2 » Thu Feb 04, 2010 10:18 pm

Thanking you for everything-EVERYTHING, all of your intellect, energy, effort and everything you have done to bring CCSVI to all of us. I can never thank you enough for sharing what you know.
Prayers are with you and your family for everything you all need.
Please know how much we all love you both.
Sincerly, Rose xo
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Postby MS_Jess » Thu Feb 04, 2010 11:09 pm

Cheerleader, you have been an inspiration to me! I have poured through previous posts and have read your endothelium dysfunction essay in my journey to learn more about CCSVI. I tell all my friends about your thorough research and remarkable dedication, work, and determination. I can't believe all you have done thus far! Truly, an inspiration!
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Postby jilthepil » Fri Feb 05, 2010 7:09 pm

Certainly a break is deserved and needed. You are a wealth of information, Joan. I cannot thank you enough for the support you have given this community of MS patients.

Rest and be with your family.

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Postby CRHInv » Fri Feb 05, 2010 7:43 pm

I will miss you!
Take good care,
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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