jak7ham9 wrote:Hi I ordered deferiprone a monthago still have not received it. It is not available for use in usa. You can get it in europe and mexixo try the internet. They have exjade and desferroxamine but deferiprone sounds better. THERE ARE SEVERAL ARTICLES where it is used to treat fredericks ataxia to good sucess. That is a gentic ataxia which is based on iroon accumulation problems. I think it will be a key answer for treatment. Barbara
Yes, we have Exjade in Slovakia for sure. I just must have an prescription.
I just have to find a doctor who would prescribe this to me.
First of all I must find out what specialist might prescribe it. All doctors I am in contact with do not know.
The other problem is the doctor can only prescribes it when he sees my iron deposits. I do not know why, but MR doctors have difficuilties to install SPIN software.
I hope I will manage this year.
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse