This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Tue May 21, 2013 3:08 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 9 posts ] 
Author Message
PostPosted: Thu Feb 11, 2010 4:09 pm 
Offline
Getting to Know You...
User avatar

Joined: Wed Dec 16, 2009 4:00 pm
Posts: 20
any posts on Deferiprone?

http://abclocal.go.com/kgo/story?section=news/health&id=7267620

i dont know where this belongs, but interesting nonetheless...


Top
 Profile  
 
 Post subject:
PostPosted: Thu Feb 11, 2010 4:52 pm 
Offline
Family Elder

Joined: Mon Dec 21, 2009 4:00 pm
Posts: 366
Location: Houston, TX
VERY INTERESTING!!

1) I wonder what Travis' doppler and MRI look like...

2) I bet this might have use in MS.

Maybe someone should contact this doctor and see what else he's used this for.

_________________
If you can't explain it simply, you don't understand it well enough. - Al Einstein


Top
 Profile  
 
 Post subject:
PostPosted: Thu Feb 11, 2010 4:59 pm 
Offline
Family Elder

Joined: Mon Dec 21, 2009 4:00 pm
Posts: 366
Location: Houston, TX
just checked and many references can be found.

here is one:

http://www.thisisms.com/ftopicp-82207.html

_________________
If you can't explain it simply, you don't understand it well enough. - Al Einstein


Top
 Profile  
 
 Post subject:
PostPosted: Thu Feb 11, 2010 5:58 pm 
Offline
Getting to Know You...
User avatar

Joined: Wed Dec 16, 2009 4:00 pm
Posts: 20
AC,

i did a search too and deferiprone was buried in the posts deeply and i gave up tracing down the word...

if anybody knows info about deferiprone, could you post it? dedicated to deferiprone?

CCSVI is still quite new, so i doubt there is much info available on the iron deposites in the brain. i am lucky enough to get IJV correction in early march and im already working on the next step... maybe this is it? since my neuro is relatively non-existant now, i feel like i have to do this all on my own...

advanced thanks to anyone who chimes in!


Last edited by highhopes on Fri Feb 12, 2010 7:16 am, edited 2 times in total.

Top
 Profile  
 
 Post subject:
PostPosted: Thu Feb 11, 2010 6:52 pm 
Offline
Getting to Know You...
User avatar

Joined: Wed Dec 16, 2009 4:00 pm
Posts: 20
just read that thread that you posted, AC, and it looks like i have to find a neurologist that is interested in this theory.

i AM interested, but i am a filmmaker and a musician, NOT a specialist with regards to the human brain...

thanks for that link!


Top
 Profile  
 
 Post subject:
PostPosted: Fri Feb 12, 2010 2:23 am 
Offline
Family Member

Joined: Sat Sep 05, 2009 3:00 pm
Posts: 63
Location: Slovakia
the only link I found...
Deferiprone, an orally deliverable iron chelator, ameliorates experimental autoimmune encephalomyelitis
http://msj.sagepub.com/cgi/content/abstract/13/9/1118


Top
 Profile  
 
 Post subject: derferiprone
PostPosted: Fri Feb 12, 2010 4:29 am 
Offline
Family Member
User avatar

Joined: Mon Oct 29, 2007 4:00 pm
Posts: 90
Hi I ordered deferiprone a monthago still have not received it. It is not available for use in usa. You can get it in europe and mexixo try the internet. They have exjade and desferroxamine but deferiprone sounds better. THERE ARE SEVERAL ARTICLES where it is used to treat fredericks ataxia to good sucess. That is a gentic ataxia which is based on iroon accumulation problems. I think it will be a key answer for treatment. Barbara


Top
 Profile  
 
 Post subject: Re: derferiprone
PostPosted: Fri Feb 12, 2010 5:16 am 
Offline
Family Elder

Joined: Wed Jul 29, 2009 3:00 pm
Posts: 1099
Location: Slovakia, Europe
jak7ham9 wrote:
Hi I ordered deferiprone a monthago still have not received it. It is not available for use in usa. You can get it in europe and mexixo try the internet. They have exjade and desferroxamine but deferiprone sounds better. THERE ARE SEVERAL ARTICLES where it is used to treat fredericks ataxia to good sucess. That is a gentic ataxia which is based on iroon accumulation problems. I think it will be a key answer for treatment. Barbara

Yes, we have Exjade in Slovakia for sure. I just must have an prescription.
I just have to find a doctor who would prescribe this to me.
First of all I must find out what specialist might prescribe it. All doctors I am in contact with do not know.
The other problem is the doctor can only prescribes it when he sees my iron deposits. I do not know why, but MR doctors have difficuilties to install SPIN software.
I hope I will manage this year.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse


Top
 Profile  
 
 Post subject:
PostPosted: Fri Feb 12, 2010 4:51 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8506
Interesting! You'll post back, either of you, once you've tried it?

_________________
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 9 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Interesting

sbr487

0

711

Tue May 18, 2010 11:01 am

sbr487 View the latest post

There are no new unread posts for this topic. Very Interesting

Gordon

0

766

Mon Oct 04, 2010 1:54 pm

Gordon View the latest post

There are no new unread posts for this topic. Interesting Observation

[ Go to pageGo to page: 1, 2, 3, 4 ]

Lyon

53

5193

Mon Dec 21, 2009 7:00 am

magoo View the latest post

There are no new unread posts for this topic. just an interesting view

costumenastional

14

1782

Sun Mar 07, 2010 11:15 am

Zeureka View the latest post

There are no new unread posts for this topic. Interesting info...

PCakes

2

1057

Tue Mar 09, 2010 1:16 pm

PCakes View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: