Dr S. The last thing I want to do is waste your time but I got to ask you to listen to this its a radio Interview with the great Dr. Freedmen the head of neurology I believe in Canada. Dr. Freedmen has to be the biggest Skeptic for CCSVI It is remarkable what kind of trash that comes out of his mouth in-regards to scanning,treatment, investigation, people dieing from treatment, and so on
The best part is he tries to explain what Drs in your field should be doing
Thats like a car Mechanic (DR Freedmen) trying to tell a Airplane Mechanic ( Dr. S) the best way to change the brakes on the plane.
He speaks about one person dying yet does not even mention the fact the Tysabri has killed well over 50 people giving them PML
So by all-means DR. S here is the link to the site with the audio link on the right hand sidehttp://www.am770chqr.com/Blogs/RobBreak ... D=10111605
Hey Dr. S thanks ahead of time for listen to it I am far from a Doctor but will give you this small piece of advice take small Deep breaths while listening to his rants haha Lol
I avoided dr Freedman's words for a long time because of his arrogant patronizing tone. Now that I have actually heard him, He is quite persuasive. Thus based on this interview, I have realized that only a neurologist knows what is best. Therefore I have decided to abandon all work on CCSVI and begin a course of treatment with Tysabri for myself and all my family and friends
just joking, just joking.
Actually, I did think that he came off as condescending and patronizing. I was displeased that he exaggerated the data to favor his point of view. 22% morphed into a third and 62% morphed into less than half.. His description of the procedure as dangerous is unfounded, and unfairly frightens patients, giving a distorted view of risks. Thankfully he did not stay on the venipuncture as a source of infection mantra of the past.
On the other hand, I agree with him that we do not have the data to go at this without investigation. Word of mouth is not adequate. We hear the glowing stories. Does that mean that patients would be as willing to talk about the failures? I am not sure
Dr. Z and I and many others in the IR community believe that this is an unproven hypothesis with some encouraging results. Dr. Zamboni has advised patients to participate in trials rather than not.
I fully empathize with patients who fear progression and want this immediately. If I were an 'MSer I would be looking for someone to treat me. However as trials get up and going, patients have some responsiblity to participate in these. Just as Zamboni's patients chose to participate, not only for their own benefit but for that of all MSers, so too should you join those trial to prove the points about which you feel so passionate .
Now, let's get back to work, designing some studies and proving this for all.