DrSclafani answers some questions

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Daisy3 » Thu May 20, 2010 4:37 am

Algis wrote:
What else might be caused by CCSVI that we could be treating?


Just go to the emergency room; sit and shout "my jugulars hurts, help!!"...?



Now that is funny.

If people try it, please have camcorder to the ready..lol
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Postby Trish317 » Thu May 20, 2010 7:04 am

Algis wrote:
What else might be caused by CCSVI that we could be treating?


Just go to the emergency room; sit and shout "my jugulars hurts, help!!"...?


Thanks, Algis! I really needed that laugh.... :)
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Postby Cece » Thu May 20, 2010 10:57 am

Algis wrote:Just go to the emergency room; sit and shout "my jugulars hurts, help!!"...?

:lol: :lol: my first thought was: would that work? :lol:
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby girlgeek33 » Thu May 20, 2010 2:42 pm

Have you heard much about this? What do you think?
http://abcnews.go.com/GMA/OnCall/cuttin ... d=10693734
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Postby NormB » Thu May 20, 2010 4:32 pm

Thinking along the same lines as the emergency room gig, (is funny)
I might just set a tent on the lawn of Parliament Hill and not move until
they would at least acknowledge our mission; to be treated for ccsvi whether or not being linked to MS. I'm sure a few phone calls to local tv reporters would shake things up.

Any takers, I'm game.


Take care all


Norm

EDIT Sorry not meaning to stray from this topic subject with Dr. S
I only realised later after I posted. Maybe pm me and then start a new topic from there.
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Postby Cece » Thu May 20, 2010 7:38 pm

girlgeek33 wrote:Have you heard much about this? What do you think?
http://abcnews.go.com/GMA/OnCall/cuttin ... d=10693734

abcnews.go.com wrote:Optical Coherence Tomography, or OCT, approved by the FDA in April 2010, forms images by reflecting light inside blood vessels, which allows doctors to see 10 times more detail of an artery than the conventional ultrasound.

"When I first saw this, I was like, oh my God, this is unbelievable," said Costa, who was the first doctor to implement the OCT procedure after FDA approval. "It's like walking into a different world."


Seeing Details of the Heart
Before an angioplasty, cardiologists normally use an intravascular ultrasound to detect blockages. But OCT uses light, which travels faster than sound, to detect more precise details of the calcium buildup in the heart. After an angioplasty, OCT enables doctors to see whether tiny parts of stents, called struts, have been covered by tissue, or remain uncovered in the months after the stents have been put in place.

"Angiograms don't really tell the whole story because it doesn't show the plaque," said Dr. Jeffrey Moses, director of the center for interventional vascular therapy at New York-Presbyterian Hospital Columbia University Medical Center. "Ultrasounds have a certain resolution, and OCT has 10 times that resolution. That lets us see the artery in very fine detail; so we can define the actual plaque, how much fat there is [and] how much clot there is."

It's better than IVUS!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby Algis » Fri May 21, 2010 3:51 am

Also that one: http://www.sciencedaily.com/releases/20 ... 102913.htm but we'll need some time before it's widely available I guess...
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Postby thisisalex » Fri May 21, 2010 5:47 am

Hello Dr. Sclafani,

im a big fan of your presence here, and would like to ask a question.

A neurosonographer has jus published a critical approach to Zamboni's Doppler methodology.
He thinks that 3 out of the 5 Zamboni criterias are completely nonsense, and are not for diagnosing an occlustion in a vein.

He also states that none of the Ultrasound pictures published by Zamboni convinced him that a vein occlusion has been observed.

He gives detailed description about his doubts here:
http://www.thisisms.com/ftopic-11804-0- ... rasc-.html

May i ask your professional opinion about these statements? It would be very important to reply to his opinion, because in hungary we have just started to organize a CCSVI trial... and would like to finish it :) :)

thank you very much!
alex
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Postby Zeureka » Fri May 21, 2010 5:56 am

Just to renew my subscription...have been away a while :D
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Postby NZer1 » Fri May 21, 2010 2:54 pm

Update on the questionnaire for Dr.s' trial.

There is working going on behind the scene that is progressing well. The work is done voluntarily so when it comes out please thank the contributors. It is a league of nations effort, and even with the distances involved it is happening as I type.

Special thanks to Sqeakycat and the good Dr. S for the focus and commitment.
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Postby Nunzio » Fri May 21, 2010 3:38 pm

Dear Dr. Sclafani,
I figured out why they did not find a problem in my left jugular vein I thought had a valve problem.
Dr. Galeotti explain this well: Valve cusps problems are easily identifiable by doppler but can be missed by contrast venography. Still those valve need to be dilated. See the following video starting at min 1.30.
Thanks
Nunzio
http://www.youtube.com/watch?v=B3jIY4h3kZo&feature=autofb
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Siskin

Postby FlashHack » Fri May 21, 2010 3:48 pm

Very interesting. Dr. Siskin mentioned to me about finding people where CCSVI was detected by doppler US but not seen on the venogram. He spoke of it as a indication of how unreliable the doppler was, but this would seem to indicate that the venogram was the inaccurate one. Could this be what he encountered?
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Postby drsclafani » Fri May 21, 2010 4:20 pm

i will comment later. Been very busy past two days.

only time for the survey details....

now, I am looking for a few good men and women

I am looking for five men and women to review the consent for my trial and give some feedback.

Anyone interested should pm me with their email address so I can send it. I will not discriminate and first five volunteers become friends for life :P
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Postby drsclafani » Fri May 21, 2010 4:29 pm

Nunzio wrote:Dear Dr. Sclafani,
I figured out why they did not find a problem in my left jugular vein I thought had a valve problem.
Dr. Galeotti explain this well: Valve cusps problems are easily identifiable by doppler but can be missed by contrast venography. Still those valve need to be dilated. See the following video starting at min 1.30.
Thanks
Nunzio
http://www.youtube.com/watch?v=B3jIY4h3kZo&feature=autofb


FlashHack Posted: Sat May 22, 2010 8:48 am Post subject: Siskin

--------------------------------------------------------------------------------

Very interesting. Dr. Siskin mentioned to me about finding people where CCSVI was detected by doppler US but not seen on the venogram. He spoke of it as a indication of how unreliable the doppler was, but this would seem to indicate that the venogram was the inaccurate one. Could this be what he encountered?


"people see what they are prepared to see." (attributed to many including Descartes, Whitman, Edison)
As I have said, the difficult part of this is the diagnosis. the treatment techniques are less difficult. My ultrasonographer has really struggled to find things that seem pretty obvious on venography. He and I are going to ferrara in a couple of weeks to learn better from dr z.

i Have only seen one normal jugular vein in a patient i have treated

I think it is the combination of IVUS and venography that is working for me. .

anyway, nothing is fool proof. Nothing is 100% accurate.
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Postby Zeureka » Fri May 21, 2010 4:42 pm

drsclafani wrote:[
I think it is the combination of IVUS and venography that is working for me. .anyway, nothing is fool proof. Nothing is 100% accurate.

That's great news to know you've grown so much to find this out, via all your commitment and experience!! Wish you a successful meeting with the Ferrara team and fruitful exchange of both your experiences !
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