msgator wrote:Hi Dr. Sclafani,
I am on your list and went to my neurologist today. He is very supportive of my having the procedure as long as I stay on the copaxone in the mean time. He has a lot of respect for the people in Buffalo and is pleased that there are opportunities closer to home (I am in CT) to have things checked out.
So my question is....what do you need from him as far as medical records/ reports???? He would like copies of reports, if possible, on all the tests/procedure you will do. He doesn't care to see the images, because he doesn't think he would be able to read/understand them.
I thought he would have that response, but after everything I have read I did get nervous.
Thanks again for everything you are doing. I am a faithful reader, if not contributor.
given the state of the art at the moment, i agree with your neurologist that you should stay on medications that he prescribing for you.
a synopsis of your condition from your doctor would be most welcome. Since most neurologists have been against this form of treatment, that would be a luxury.
Any images you have of your brain and spine are very helpful so we can see progressions and affected areas. If the last one is older than a six months, try to get one before you come or it will be done here.
I usually send a report back when the neurologist is interested and i send them a small powerpoint presentation of your condition rather than all the images, A few arrows and circles helps those unfamiliar with the imagery.
hope to meet you sooooon!