This Is MS Multiple Sclerosis Community: Knowledge & Support

The first four tests are all tests that can assess loss of ON function whether it's permanent or just compromised function from inflammation . So it would be interesting to see if they demonstrate improved function post liberation.
In lots of cases there may be some permanently damaged optic nerve fibres , but if the ON function improves post liberation these tests will
accurately reflect that.

The first four tests can be reversible; we know that because after Optic Neuritis resolves they all improve.
The OCT might not be because it measure the thickness of the nerve fiber layer which , once is lost, cannot regenerate.
Another very important test, probably the most important screening test is to check the pupils. It is called APD or RAPD and it compares the size of the pupils in darkness and light. It can be quantitated by using different gray filters.

I am amazed as to how knowledgeable members of this forum are-you are so right in all your comments. The Afferent Pupil defect will show up only if there is enough damaged ON axons. The Visual evoked potential test is way more sensitive though.

Once again, we in the MS community have reason to celebrate the amazing genius of Professor Roy Laver Swank.


http://www.takingcontrolofmultiplescler ... icleID=117

These people are being murdered. For whatever reason. If it is a buck, or an ego, or bureaucracy, or scientific stubbornness, whatever it is. If in law it would only be malpractice, or manslaughter. Whatever. It is still a crime of omission. It is still deliberate. It is still murder. Your friend was murdered.

And not by you. Dr. Sclafani!

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

What is being murdered is science and common sense. Back to the general forum for me where logic still exists.

Bye!

I think this only applies if the liberation treatment were a proven treatment...otherwise not many doctors would try this on someone in very bad shape...but it is very, very, very tragic. Condolences, girlgeek33.

I think we are convinced, because we are immersed in this and have read all there is to read, but the average doctor hasn't, at all...so maybe we need our spouses or loved ones to be advocates, in this situation...or have a living will...I don't know.

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

That's very intersting to hear, NZ ! In fact Swank is in my view another heroe that should have had a noble prize - and I'm on the Swank diet since diagnosis. I eat nearly no meat, except chicken/turkey breast there and then (butter and cream are banned, only fish and vegetables/fruit/cereals/potatoes/low-fat milk products/vegetable oils rich in omega-3 and 6) - and have impression that it helped me a lot!

My family follows nearly same diet - the kids get their meat at school...it's actually not too complex as a diet and certainly healthy for everyone, also for cardiovascular issues (if one manages to find alternative treats, but there are!). And lets let obesity...I need to eat double in order to keep my weight...in fact at hotel in Poland they were wondering when saw my tons of fruit and smoked salmon/fish plates of breakfast in mornings...

And where's the question to Dr Sclafani? Ah, yes, maybe to ask what do you think about this Swank diet?

from March 31st:

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

One of the neurologists I have seen for my M.S. told me last week that " one of the big holes in Dr. Zamboni's theory is in regards to the source of iron found in MS brains". This neurologist claims ( through his own research ) that " increased iron in the MS brain is an accumulation ( for some reason ) of iron normally found in the brain and is different than iron that would be found there if it's source was reflux of blood from jugular veins".
Now, does anyone know what this difference might be?
I had so many questions for him I forgot to get him to clarify what he felt was different . Dr S. any thoughts here?

Dr. S is in Italy with Paolo Zamboni for the week with no internet access. We probably won't hear from him until next weekend.

Hi garyak,
There are some on this forum (and elsewhere) that believe that iron loading in the body may have something to do with hemochromatosis &/or iron loading anaemia. Ck out the "phlebotomy anyone?" & "iron metabolism panels should be first" threads. There is also lots of info on the hemochromatosis.org & ironloading.org sites. This intrigues me a little for reasons I won't bore you with! But have a look - maybe your doc might have an interest in some of this??
I used to live near GP, in fact I saw an optometrist in GP...

Here's what Dr. Sclafani had to say about iron on April 11th:

So the type of iron in the brain left by blood would be hemosiderin...which is not the form of iron found in the brain in MS...but there is a way for hemosiderin to break down and become the type of iron deposits found in the brain in MS? Any hematologists here, by chance? Anyone know what form of iron IS found in the brain in MS?

Ok, he addressed it again a few days later, at 3 am in the morning, which would get him the award for dedication if he didn't already have it just for being here:

So: hemoglobin breaks down into hemosiderin which breaks down into...?

edited to add:
from wikipedia: "Much of the resulting important breakdown products are recirculated in the body. The heme constituent of hemoglobin are broken down into Fe3+ and biliverdin. The biliverdin is reduced to bilirubin, which is released into the plasma and recirculated to the liver bound to albumin. The iron is released into the plasma to be recirculated by a carrier protein called transferrin." http://en.wikipedia.org/wiki/Red_blood_cell

FE3+ is ferric iron, Fe2+ is ferrous iron.

So the hemosiderin breaks down into ferric iron...

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

Sorry to double post but I need to credit AlmostClever's excellent thread index or I wouldn't be finding any of this!!

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition