MS_mama wrote:Dr S--
Can you tell us a little bit more about the possible risks of the procedure? I am concerned about what I am hearing from patients that they improve temporarily but then when they worsen, they worsen to a point worse than pre-procedure. Plus some patients are remarking that they start progressing faster than before. That makes me wonder if, as I had asked before, if this is related to the procedure causing the veins to become hyper-reactive.
I am also concerned about a couple of reports of people developing new symptoms immediately post-procedure. Have you seen this?
I have seen a variety of situations
dramatic improvement lasting a few weeks
dramatic improvements that are sustained
exacerbation happening at the time of liberation
exacerbation after liberation
slight improvement that gradually increases in improvement
sustained progressive improvement
In other words, i have seen no pattern, nor have i become clear about long term effects. Afterall, my patients are about 3-4 months out from the procedure. it is too early to tell, and unfortunately there is too little information out there
And lastly, if i may inquire about the potential relevance of the lumbar veins---so if I understand you correctly, hypoplasia of these veins may be associated with spinal lesions?and is there any possible connection between may-thurner and MS?
Yes, it is likely that spinal lesions are associated with lumbar vein hypoplasia. May thurner, renal vein obstruction and other abdominal venous problems may make ccsvi worse. But i would not think that there is a greal association btween M-T syndrome and ccsvi