...As i watched that first procedure in ferrara, i noted that they did a venogram of the left iliac vein and then catheterized the left ascending lumbar vein and did another venogram. I aske paolo what that was all about and he told me that they were looking for narrowing of the left iliac vein (a congenital narrowing called May thurner syndrome) and then were looking for hypoplasia of the lumbar veins. They also looked for narrowing of the vein of the left kidney. The light went off! That was why they entered from the left side...
May-Thurner syndrome (MTS) is caused when the left iliac vein is compressed by the right iliac artery, which increases the risk of deep vein thrombosis (DVT) in the left extremity. DVT is a blood clot that may partially or completely block blood flow through the vein.
Most people do not know they have MTS, but it is identified when they present with a DVT.
Patients should seek treatment for symptoms, including swelling, pain or tenderness in the leg, feeling of increased warmth in the leg, redness or discoloration of the skin, or enlargement of the veins in the leg.
Even though DVT itself is not life-threatening, the blood clot has the potential to break free and travel through the bloodstream, where it can become lodged in the blood vessels of the lung (known as a pulmonary embolism). This can be a life-threatening condition.
JoyIsMyStrength wrote:This is why most doctors hate it when patients look up scary stuff on the Internet, right?
Cece wrote:JoyIsMyStrength wrote:This is why most doctors hate it when patients look up scary stuff on the Internet, right?
They seem to also hate it when we join message boards and fly off to Poland for (minimally invasive percutaneous etc) experimental surgical procedures.
1) Know I've started to read your post. You are SO generous of your time & knowledge. I thank you from all of us
2) I know you won't go specific about dortor names, but your agenda being so full, we have no choice but to look at other options. Not so many doctors performs it (America), I've listened testimonials of people that had the procedure done by another Dr.S, but how can we know if that specialist is updated with the "best" available practices? Do you all keep in touch?
+ there is big price difference. Is one of the reason being clinic vs hospital?
drsclafani wrote:Daisy3 wrote:Hi Dr S,
My husband has been-recently-diagnosed with MS. It's also a rare form of MS too,known as RPMS. It seems a lot like PPMS.
Have you any experience with RPMS?
My slight worry is that when we do finally have the investigations done they won't find anything wrong with him.
Dr Zamboni did not mention this type of MS as far as I know..
I have no experience with this classification.
Progressive-relapsing and relapsing-progressive multiple sclerosis: a re-evaluation.
Kremenchutzky M, Cottrell D, Rice G, Hader W, Baskerville J, Koopman W, Ebers GC.
Department of Clinical Neurological Sciences, University of Western Ontario, London, Canada.
Classifications of multiple sclerosis subtypes have been largely based on clinical phenomenology. Nevertheless, definitions of relapse, remission and progression have been imprecise. Recently an international consensus group, as part of a reclassification of disease subtypes, recommended dropping the term 'relapsing-progressive' (RP) and retaining the term 'progressive-relapsing' (PR) multiple sclerosis. The term 'RP' multiple sclerosis had been applied when the early course combined both relapses and progression and was believed to identify some patients with a worse than average outcome.
annhow wrote:Dr. S.
Wishing you the best as you meet with the IRB. May you have tremendous favor with the board and satisfactorily answer any and all reservations they could possibly have about CCSVI and granting your IRB status!
I know everybody here will be thinking of you.
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