i will discuss this more later when i give my zamboni report, but not all ccsvi is picked up via azygous and jugular venography. I was caught by surprise on that one! but you will have to wait for an explanation of some of the negative venograms!
When I read zamboni's paper, I noted that he stated that roberto galleoti, the IR who works in ferrara, enters the left femoral vein and advances up into the azygous and the jugulars. I thought that peculiar because it is such a straighter shot up the right femoral into the jugulars and azygous.
I aske paolo what that was all about and he told me that they were looking for narrowing of the left iliac vein (a congenital narrowing called May thurner syndrome) and then were looking for hypoplasia of the lumbar veins. They also looked for narrowing of the vein of the left kidney. The light went off! That was why they entered from the left side.
Paolo, why didnt you say so in your paper, I asked. Because the editors cut it out for space reasons!
So now i will do all my catheterization from the left femoral approach, even though I dont like to.
Apologies if I've missed some of the discussion after this point.
This is very worrisome - do you know if the Simka/Kostecki folks who are reporting 85% CCSVI are going through the left femoral vein or not?
I suppose it's more than the 15% SOL rate (of which half seem to get sent home with a Lyme disease disgnosis). I haven't see much reporting of what fraction of people see improvements post-op, but I wonder also about discrepancies between DrZ, DrD, you, and others on this count.