bluesky63 wrote:Dr. Sclafani, I want to thank you and everyone for this great thread -- educational, eye- opening, and who could have guessed it could be so emotional and funny.
I think that somewhere in here you indicated that the venogram is a steep learning curve. By that, do you mean it's success is going to be dependent on the experience of the person doing it? I think what I'm asking is, if a person has a venogram to assess for CCSVI, how critical is it to go to someone who has already been working with this issue?
Or would you safely assume that any competent vascular specialist would recognize these malformations and be able to treat them?
We worry about these details as we bring this stuff to local vascular specialists.
Thank you from the heart for your thoughts and time. :-)
I would like to re-iterate that question. The local sonographer told me that my sonogram was normal - that the weird valve stuff going on, the reflux in the colour Doppler, the distinct narrowing of the IJV proximal to the clavicle were pretty normal. He has seen things like it before - like in all 100 PwMS he has scanned! He did concede that the lack of collapse of my IJVs when erect was abnormal.
I do tend to go on, but, as blueskies asked, ought we to be confident that any competent vascular surgeon, interventional radiologist, etc., would see bad valves, stenosis, etc., as something to be treated? There was the doctor in Australia who went in, and backed out without treatment.