This Is MS Multiple Sclerosis Community: Knowledge & Support

It is such an easy procedure. Do you feel an easy procedure is worth a 50/50 chance of feeling improvement? I don't know what the true percentages are with how many experience improvements vs. not. I just know the procedure was so easy and I love the improvements I have received!!!!

When I read zamboni's paper, I noted that he stated that roberto galleoti, the IR who works in ferrara, enters the left femoral vein and advances up into the azygous and the jugulars. I thought that peculiar because it is such a straighter shot up the right femoral into the jugulars and azygous. In my entire career I have entered the right side in more than 98% of procedures. (For your information catheter manipulation is always more accurate in a straight line. when the catheter has to curve, it loses some of the fine tuning.)

The paper never really explained why robbie did that. So as i watched that first procedure in ferrara, i noted that they did a venogram of the left iliac vein and then catheterized the left ascending lumbar vein and did another venogram. I aske paolo what that was all about and he told me that they were looking for narrowing of the left iliac vein (a congenital narrowing called May thurner syndrome) and then were looking for hypoplasia of the lumbar veins. They also looked for narrowing of the vein of the left kidney. The light went off! That was why they entered from the left side.

Paolo, why didnt you say so in your paper, I asked. Because the editors cut it out for space reasons!

So now i will do all my catheterization from the left femoral approach, even though I dont like to.

How can evaluating the lumbar veins be helpful? it is helpful in explaining the disease. at the current time, there is no solution to the lumbar vein narrowings (hypoplasia). But it can explain the disease. It appears that lumbar hypoplasia is associated with PPMS.

The mechanismS by which these veins affect the spine as as follows

narrowing of the renal vein and the iliac vein reduce the ways for the blood to exit the spine. in fact they may actually increase that flow. And perhaps that leads to ccsvi of the spine.

So i think that some of those who have had venograms that appear normal just havent had all the right imaging done.
http://www.thisisms.com/ftopic-10680-da ... -1890.html

Hi girlgeek33,

i do appreciate a 50:50- chance of improving is better thana 0% chance, but it just worries e that with everyone else. virtually all MS'ers have symptom improvement!


I was hoping there was some form of balloon angio Protocol i could show her?

thanks

Perhaps she is only looking for stenosis and not also for problems with valves?

Adamt,

Ask your doctor to reach out to Dr. Sclafani. He is always willing to share what he's learned. PM me if you don't have his contact info.

is looking/checking the plexus veins the same as checking the valves?

I’m with you burg. Dr. Sclafani, I haven’t felt like I had anything to contribute to this discussion – except my heartfelt thanks and support – but I’ve been waiting for you to decide how you’ll proceed and watching for when and where I can contribute. In all my years of dealing with this disease I’ve never felt such hope and have never felt like someone was passionately looking for a way to help me. What you’ve already given me, knowledge and hope that there could be a chance . . . is immeasurable and you have my heartfelt gratitude and loyalty. I would be honored to contribute. Sue

3. Thanks for the leads on centers. just remember that if i arrange something, i will not announce it. i will become another backalley liberator.

2. The reason to look for a May thurner syndrome is not because anyone thinks there is an association. Zamboni only found about 3 patients in more than 100 patients.