lilsis wrote:
What happened to the good ol' Case Report? There are thousands that have been published but I've yet to find one for a treated MS patient. What would happen if every physician who has treated CCSVI submitted one Case Report each? I know it doesn't count for much, but if they were coming from everywhere wouldn't it be something at least to show improvement or overlapping symptoms between MS and impaired cerebral circulation?
Speaking of Case Reports, I read one on dural sinus thrombosis and the surgeon stated the cause of the thrombosis was IJV stenosis, citing that venous stenosis promote turbulence and progressive thrombosis and should be treated with safe and effective balloon angioplasty. It was published in 1996. Symptoms included lethargy, blurred vision, balance and coordination issues, sensory and motor dysfunction, to name a few.
Since my sister has been treated (RIJV only as the azygous was never checked and the left is still a big question mark) she has felt on nine separate occasions a sensation of something slithering across the inside of her forehead, to the temporal bone, behind the ear and down the neck, all the while accompanied by pressure as it moves. Each time she feels it get 'stuck' behind the ear (stenosis was ballooned), the pressure becomes painful, and with diaphragmatic breathing it finally continues its path down her neck and no longer feels it once it passes below the clavicle.
I have heard similar stories from 2 other people, and Denise Manley of the US was found to have a calcified clot in one of her IJVs. Do you agree with the statement (application of Virchow's Triad?) that venous stenosis promote turbulence and progressive thrombosis?
Thank you so much for your time and compassion.
that is an interesting symptom complex. a slithering across the inside of the forehead. What did her neurologist think about that. you seem to be suggesting a clot but i have never heard of such a thing
of course i believe that stenosis leads to turbulence and that can cause thrombus and thrombosis. I have used that argument to advance treatment. It is logical and it is appropriate in my view to treat the stenosis in symptomatic patients. There are many reports of dural sinus and internal jugular vein thrombosis treated by thrombolysis and angioplasty with improvement. However, i do not recall that any that i have read were in patients with MS
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