drsclafani wrote:CCSVI is a condition in which the main cerebrospinal venous outflow routes are obstructed, leading to symptoms of fatigue, headaches, weakness and cognitive dysfunction.
This is how you'd separate out the symptoms of CCSVI from the symptoms of MS!
drsclafani wrote:yes, but still have to convince others that it is true
It's back to the process of defining again, like the definition of a web or a membrane or the sorts of malformations seen, and the definition of CCVSI itself.
MS may be nothing more than a collection of neurological signs that are a result of years of untreated CCSVI. The old definition, "MS is an autoimmune disease," is certainly up for redefining. Should it have been called a syndrome all along? It seems more accurate and it might've lowered the resistance to the discovery of CCSVI as a possible cause.
Donnchadh wrote:Perhaps as the liberation procedure becomes more common, the IVUS would come into more use and thereby lower the cost per unit.
Or perhaps as patients we need to pick and choose the docs who use ivus over the docs who don't, in the interest of getting the best treatment for ourselves (over the docs' possible interest in cost-cutting)? Or will all docs follow the use of ivus as best practices once it's determined to be best practices?
drsclafani wrote:It seems very ironic that my first plan was to follow dr zamboni's protocol and make modifications afterward. Seems like few chose that path.
Is it that everything is moving faster than expected? There is something of a tidal wave of MS patients seeking out this procedure.
Cece wrote:I would argue that catheter venogram with IVUS in the hands of a skilled CCSVI doc is the true top standard...and how many skilled ccsvi docs do we have?? Not nearly enough.
NOT NEARLY ENOUGH ... but more than you think ... (and their numbers are growing by the day).
Very encouraging, CCSVIhusband.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition