drsclafani wrote:We want to catch the recurrent stenosis early, not late. NO ONE NEEDS TO HAVE AN RELAPSE IF WE CAN AVOID IT!
drsclafani wrote:Luxuriant vicarious drainage (aaah, havent said it in a while) puts too much blood flow throught small veins in the spinal cord and brain. This leads to leakage or red blood cells and immune cells from those small blood vessels into the tissue. This in turn leads to demyelinization, iron deposits and damage to brain and spine.
PCakes wrote:drsclafani wrote:....back on the pharm thats the way we do it
have you looked in jail?
You've got to love this man..
1eye, I feel I need to join you in questioning the physics behind the flow variation through the IJVs.
We all have learned here what the normal variation to expect in a healthy person is - but what is the hydraulic reasoning behind?
In fact this is what has caught me about CCSVI - the HYDRAULICS of it: If it is "just" a mechanical problem in a hydraulic system of drainage tubes and valves, so there should be a good chance of fixing it by a suitable "plumbing" !
Dear Doc, would you have any nutritive comments on the physics of this flow variation phenomena in IJVs?
Few of us here could possibly sleep better then...
Thanks once more, all the best for the symposium
welshman wrote:Dear Dr S., re your Symposium.
From the "program" it appears all the speakers will talk for about half and hour on their various experiences and then at the end there will be a 2 hour case study session.
From what you've been writing lately, and something that almosts scares the life out of me, there seems to be no standard for diagnosis and treatment, yes we have the Zamboni Protocols, but it seems many "liberators" are using stents, you yourself have suggested maybe better ways to diagnose, and obviously as more and more treatment is being done, we will get even better at doing it (I say "we" in the "royal" sense of the word). And of course as you've also addressed, there are clinics popping up all over (EXCEPT IN CANADA UNFORTUNATELY!!!!!) and no one knows how well trained these people are. I've also read you addressing the possibilities of missed diagnosis, the likliehood of the azygous vein not being checked etc, etc, etc.
So a question re the Symposium would be, will all "the guys" attending be getting together to swap stories on diagnosing / treating, will anyone be raising the issue of standardizing what you all do, will you be trying to arrange that everyone is kept up-to-date ??? Or are you and "the guys" already doing this ?????
drsclafani wrote:please tell your IR that i have written a primer in ENDOVASCULAR TODAY. It should come out next month.
Cece wrote:fogdweller, this was from a few days ago:drsclafani wrote:please tell your IR that i have written a primer in ENDOVASCULAR TODAY. It should come out next month.
THERE IS QUITE A BIT OF ROOM LEFT. FILLING THE ROOM WILL SHOW THAT INTEREST IS HIGH AND THAT THIS IS SERIOUS.
WE CAN ACCOMODATE ABOUT 75 MORE GUESTS
drsclafani wrote:Renoandi wrote:Dear Dr. Sclafani,
I am sorry if this question has been asked elsewhere, but looking through all of the threads is hard for me.
I am wondering how CCSVI affects the spinal cord? Would the azagos vein be the reason with refulx and leaving iron deposits in the spinal cord.
I ask because all of my relapses have been due to spinal lesions. I understand how the refulx in the brain works, but have not seen anything really addressing the spinal or cervical cord.
Even in all the drug studies and trials they only look at the brain, which I don't understand. The spinal cord does a lot of damage in MS, yet I don't read or hear much about that.
Thank you for all you are doing to help get proper information out there,
the theory of ccsvi postulates that there is resistance to drainage of the spine and brain. Luxuriant vicarious drainage (aaah, havent said it in a while) puts too much blood flow throught small veins in the spinal cord and brain. This leads to leakage or red blood cells and immune cells from those small blood vessels into the tissue. This in turn leads to demyelinization, iron deposits and damage to brain and spine.
Robnl wrote:If no CCSVI is detected, but the small veins in the spinal cord and brain are narrowed, i suppose you have the same problem....blood leakage into the tissue??
girlgeek33 wrote:Thankfully, Dr. Bonn has a great follow up plan. I'm currently in waiting room for my 3 month follow up exam.
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