This Is MS Multiple Sclerosis Community: Knowledge & Support

I WAS THINKING MORE LIKE RICARDO MONTEBALN the epitome of continental elegance, charm and grace on film

Thank you, Dr. Sclafani. this is wonderful news, and just what selkie and others need to show their neurologists. Can't wait to see the article!

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CCSVI:  Making Sense of MS

Dr. Scalfani:
My husband had an MRV last week which was read as normal. We were lucky enough to be able to follow that with a venogram. The right jugular and azygous were read as normal. The left jugular however was read as compressed (by an external structure measuring 3-4 cm). The radiologist balloned it, but the position went back to roughly the same since the compression was still there.
My question is:
1. How significant do you think unilateral compression/stenosis is and how aggressively should we seek treatment?
2. What are possible structures to be causing this type of compression? Nothing "abnormal" was seen on MRV. Could it be the sternocleidomastoid and can that be debulked?
Thank you.

when the university videographer finishes the processing, i will attempt to post this symposium on line.


there was article, whose reference escapes me (countdown til someone finds it) about the failure of DMDs to improve outcomes.



i think it is vital that the speakers write a manuscript about their lectures. We need to get as much in medical press as possible.


i would be careful about that. I would be concerned about putting stuff like that out there. it wouldnt impress me.


basilic vein cephalic vein, axillary vein, subclavian vein, superior vena cava , brachiocephalic vein, internal jugular vein


Thank you for taking the time to answer these questions.

selkie[/quote]

yet it is still bittersweet. I will not be happy until i can treat patients again.

http://www.dailymail.co.uk/health/artic ... -250m.html

2 minutes!

When was the list of doctor's that attended published? Some of the doctors may not be treating yet and others may be treating patients with discretion and may not want their names published...

Just a thought.

I believe the doctors speaking is what was published. There is nothing published on the attendees listening to speakers, doctors or otherwise...

First of all, i wanted to tell you how happy i am that you returned. I have been feeling very bad about my grouchy response to your expression of art.


only very little


The dura is the outer lining of the brain. it splits along some edges and forms channels where blood flows out of the brain tissue. There are many dural sinuses, the sigmoid sinus, straight sinus, transverse sinus, petrosal sinuses, cavernous sinus and others. These connect to a variety of beins, including the internal jugular vein



as i read this


i am not willing to accept that diagnosis based upon only an mrv. Flow phenomena may give that appearance.



I dont think so. catheterizing that area has risks and can be challenging, depending upon the size of the bony canal...Besides most of the lesions causing ccsvi are located low down in the neck near the confluens with the subclavian vein

Ouch, now the IRs are going to be worried they will lose their jobs too!

Diabetes is a risk, but not a contraindication to the procedure. The presence of diabetes increases the risk of renal damage from the xray dye. It is not a high risk unless the patient also has pre-existing kidney disease.

i believe it was dr salvi who talked about this topic

is that a question?

I always assume that there is more than i can see. those just starting, more likely to miss things.
It is a familiar story, the group probably knows it by heart now.....the narrowing that was seen, was probably the impression of the carotid artery. it is usually a physiological narrowing caused by obstruction to flow further down. ..of course there are real narrowings there, including a muscle compression. But was IVUS done? how many views? was full strength contrast media used or diluted.

We should all assume there is more than meets the eye because the eye is not prepared to see everything.

I do not know where the impression that MRV is the standard came from? did your husband get a ultrasound ala zamboni?

that list was not and will not be published.

not everyone wants to be an open book like i am

Dr. Sclafani,

Was it a paper or an article that you were referring to about the efficacy of DMDs aka CRAB drugs? This paper by Ashton Embry PhD says it very well. He cites three independent studies that show that DMDs have no effect on MS progression.

http://tinyurl.com/25jrtmk

Laura
And my vote is for Robert DeNiro.

thank you, i think it is the last two papers he refers to, one of which is not in print yet