This Is MS Multiple Sclerosis Community: Knowledge & Support

This is a good question, but I'm wondering if it's true? A man I know in Ireland who wanted Liberation was told "NO" because people with cancer can have their jugulars removed and survive, as the body will compensate with bypass veins.

But the question is how long do they survive and with what quality of life?

My question would be, is it really true you can tie off jugulars without consequence? Isn't that what a stenosis is already doing? And do all people have the potential of their bodies creating an adequate bypass system?

I heard the survival rate for removal of jugulars was something like 5 years! In the case of cancer, that may be the only option, but Liberation sounds like a better option for ccsvi - doesn't it? Or am I missing something?

I too, would be interested if Dr. Sclafani could comment on this! Thnx for asking the ??

I am very happy to read this. I hope you are comfortable with your decision and that it will give you the most career satisfaction yet, plus the opportunity to make a difference.

We ain't seen nothin yet....

_________________
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

Dr Scalfani, I was present at the ccsvi fundraiser in Detroit yesterday Aug 7th. It was so good to hear from a professional who knows the facts as they are.

Thank you so much for your commitment to the ccsvi cause, we are stronger for that.

Here is what he said about some of this, back on May 5th:

_________________
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

.

i might be a little late but just found out about this awesome news!!!!

Thank You Dr.Sclafani....a true doctor who cares about getting things done and doing no harm - god bless and thank you for being the best at what you do.... we have so many great doctors standing behind us now...ain't no stopping us now or them (dr.'s)

i find it extraordinary that the naysayers can editorialize whatever they want in a biased manner and have it published rapidly.

It is true that there are papers that state that you can tie off (ligate) both internal jugular veins during radical neck surgery for cancer without developing permanent neurological consequences. (of course, these authors do NOT mention Multiple Sclerosis!)

This does not mean that surgeons ligate both jugular veins with impunity or that all surgeons do it.

Many ligate one and then come back another day to ligate the other because of the concerns about significant complications.in one paper, patients who had simultaneous one-stage bilateral neck dissection, often with jugular vein ligation, had a 10% mortality and an 11% major complication rate. But when sparing of the jugular vein was successful or if the procedure was done in two stages, mortality was only 3%. I guess it does matter.

Several authors have reported severe complications of unilateral or bilateral jugular vein ligation. these include bilateral and unilateral blindness, thought to be caused by intraorbital hemorrhages related to the venous hypertension. Other consequences of jugular vein ligation reported in the literature include intraorbital hemorrhage, pseudotumor cerebri, intracranial hemorrhages, double vision due to cranial nerve compressions, dural sinus thrombosis,

That being said, bringing this surgery into the discussion of MS insults the intelligence of patients and doctors alike.

i am sorry you are troubled by this nonsense distraction

Wow, congrats and best wishes in your new endeavors!

"The best way to predict the future is to invent it."

Hi Logic,
Welcome to ThisIsMS.



The information that Dr. Sclafani posted is correct. Pressure increases with depth due to the weight of the water above. This effect is not due to density which varies very little with depth. Water is not very compressible. I should note that density does change with temperature and salinity which is how pycnoclines form (abrupt changes in the density of water).

As an example of pressure increasing with depth, consider the following case. Assume that seawater has a density of about 1.028 g/mL. A one inch square column of water 10 meters high would weigh about 14.62 pounds which is close to one atmosphere (14.7 psi). This force would be applied to every square inch of a surface at depth whether it's a person or a submarine. The deeper one goes, the more water above and the higher the pressure. The pressure would be applied from all directions, not just from above. In comparison to the minimal change with density seen in the above graph, the pressure at 5000 meters would be 7365 psi

NHE

Dr. Sclafani, words cannot thank you enough for your caring and commitment to PwMS. Best wishes and take care of yourself.

aloha, selkie

Wow - my first time here and I immediately saw your announcement. Can only wish you all the best and hope that your decision, while I'm sure involves much personal sacrifice, advances the acceptance of treating CCSVI. Bless you Dr. S.

GRAZIE !!!

The naysayers in this case are the neurologists working with the Alberta Health Services, making this part of an official government statement on CCSVI.

This official government document makes it clear that neurologists are the experts with knowledge of blood-brain issues and if they don't think there is any merit to CCSVI, neither should you.

Indeed you do. Thank you! I am left without words to express my gratitude.

NHE

I believe that Dr. Simka has already addressed this issue.

Note that I could not find his orginal letter which I discuss below, but this abstract reviews similar material.



NHE


Edit: Here is a link to the Brenner and Simka letters to JNNP regarding Zamboni's paper.
http://jnnp.bmj.com/content/80/4/392/reply#jnnp_el_4236

_________________
Entropy is maintenance free.
Time wounds all heels.