SofiaK wrote:Hi Dr S,
I just really need to know if there are people in wheelchairs who do the liberation procedure with good results.
I'm in a wheelchair now for the past 2 years. I've had RRMS and I still get RR symptoms, but my walking hasn't returned. Strange. Frustrating.
Now, I learn from a Doppler test that my IJV are narrow at certain points.
I'd like to have the proedure done.
I've learned that this procedure helps movement. Has restoring circulation helped anyone walk again? Is there reason to hope?
Thanks for shedding some light.
the definition of a good result could be many situations, some of which will lead to great disappointment, just as other results might feel miraculous
if you are PPMS, perhaps you would consider stabilization of your situation, however bad, highly desirable
if your situations requires that you have assistance to get on and off the toilet and you improve to do it yourself, it might be an outstanding result. If you can throw your walker to the wind and climb up the steps to your bedroom without help you might be ecstatic and if you lose that effect you might be horribly depressed. if you can feel your foot, or sweat or tolerate an afternoon in the garden in 90 degree weather, you might be overwhelmed by the event
of if you think you are going to jog in a marathon and cant, you might feel that the results were unsatisfactory
what i am saying is that each of you has hopes and dreams and realities to address. We cannot predict if or how much improvement comes your way yet. we cannot tell how long the improvements will last. we cannot be sure that your trip to europe or mexico or any other area in the world will be worth it to you in the long run.
What we know is that there have been some amazing stories and outcomes, that exceed the tragic complications;
dr siskin stated a rule of thirds at my symposium: one third have amazing recoveries, one third have slow moderate improvements and one third seem the same.
he was cautioning about unrealistic expectations or wild hopes. All i can say is i hope that you are among the third who obtain the maximum benefit.