drsclafani wrote:so many posts i sometimes cant remember if i already responded.
petebou wrote:Good day Dr S,
I hope your are having a wonderful time in the woods.
I was angioplastied by Simka’s team last March. I felt great for 4 months. But recently, some symptoms have reappeared: although not as bad as before the angioplasty of my two jugs and stent placement in my azygos. It felt soooooo good that I want that back. I suspect intimal hyperplasia in my stent after reading your posts. I am presently working hard locally (Montreal) to find and convince a doc who is willing to see me as a person with a vascular problem-now that I was stented and angioplastied-and look at my veins but it is not a piece of cake. Vascular doctors up here were told not to touch us (MSers) but of course they can angioplasty people whom are hemodialysed and develop blocked jugs.
I’m concerned about total blockage of my azygos with time; if of course my problem lies there. I guess total blockage of a major vein is not a good thing. Is this scenario possible ? Do I have time to try to convince someone here or is it kind of urgent that I should be taken care of ? Should I run to the emergency of my hospital before necrosis? Go ahead scare me....
Thank you for everything you are doing for us. You are the angel I am trying to find up here. Hopefully they made a few more after you and there is one in my area!
sbr487 wrote:Dr. S,
There are some thoughts that stenosis sometimes is not an issue and can very well be compensated by collaterals etc. So, do you think the main determining factor could be reflux rather than just stenosis?
marcstck wrote:Dr. S, regarding Zamboni's very specialized sonogram protocols:
Since the abnormalities being found are far from subtle (malformed valves, anomalous membranes, mysterious septums, muscle bundles [good grief!] etc.) and the backflow of blood through the veins also being apparently quite out of the ordinary, shouldn't more generic procedures be able to detect these physical oddities?
Why does it take operators with highly specialized training using only very specific techniques to pick up signs of what amounts to gross venous dysfunction?
The knock against the recent German and Swedish studies that didn't find signs of venous reflux was that they weren't using the precise Zamboni protocols. Doesn't the fact that such precise protocols need to be followed throw up some question marks about the hypothesis?
This kind of reminds me of the MS researchers at Vanderbilt University who repeatedly (up until this day) find signs of chlamydia pneumonia in the serum and CSF of MS patients, when no other researchers or labs can replicate their claims.
Just playing devils advocate here, as you know that I'm a believer (I should be, with a big muscle bundle pinching my jugular closed), but I also believe in healthy skepticism. In a nutshell, shouldn't signs of CCSVI not require the arcane methods invented by Zamboni to detect them?
newlywed4ever wrote:Cece - great idea with the Word listing of ??s.
drsclafani wrote:cece you will be talking to yourself after i answer the last question i can. i will not be reachable except by a bear ,i guess) for the next week
ccsvi is a term coined by dr zamboni
chronic meaning occuring repeatedly over a long time
cerebrospinal venous pertaining to the brain and spine
venous insufficiency meaning that the venous outflow is insufficient for the needs of drainage.
he detects that by ultrasound which shows reflux up into the veins that should be draining down toward the heart
it is a diagnosis made by US. its consequences in the brain are a hypothesis. several patterns of insufficiency have been defined. how they reflect neurological effects is not yet clarified
drsclafani wrote:L wrote:An IR who performs two separate interventions, one for each jugular vein, was mentioned earlier in the thread. I just spoke to a spokesman for the privatescan clinic in Dusseldorf, it is Dr Beythian who does this (he works with Dr Kraus.) The rationale behind it is to avoid the unlikely event of both veins collapsing he said.
i still think this is nonesense. I have been told that dr mehta does the same thing.
Cece wrote:drsclafani wrote:cece you will be talking to yourself after i answer the last question i can. i will not be reachable except by a bear ,i guess) for the next week
I had been picturing panda bears, now I will picture grizzlies.
HappyPoet wrote:Cece wrote:I had been picturing panda bears, now I will picture grizzlies.
Cece, it's hard to believe, but you're actually wrong about something!
The black bear is the only bear that calls the Adirondacks home -- the closest grizzly bear is in the Canadian Rockies.
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