Lena wrote:Dear Dr. Sclafani,
My 15 year old daughter has not been officially diagnosed with MS (about a year ago she was diagnosed with brain lesions after paralysis of her right leg from the knee down which lasted about two weeks). Her only symptoms at this time are fatigue and somewhat foggy thinking. She was also born with one kidney (accidental discovery during a late ultrasound). Fortunately she hasn't had any issues with the kidney, but I'm really worried about repeated exposure to the contrast agent during an MRV and later on during the actual procedure. My question is, do you know of any physicians diagnosing CCSVI solely based on a doppler ultrasound or IVUS?
Thank you so much!
Pardon me for butting in;
It took over 12 years for me to be "officially diagnosed"...
The team in Katowice, Poland does the MRV without contrast, so it is not critical. Contrast is needed in the procedure. They pump you so full of saline though, that the dye would be very diluted, and flush quickly from the system. They test for kidney function before the procedure too.
Having been through it, I can see that Doppler US in the proper hands is sufficient to determine flow problems in the lower jugulars. MRV just costs big money.