Dr. Sclafani, thank you so much for this succinct and perfect summary of considerations:
"yes, and it is a good think to be deliberate in making a decision. Among the key elements are
1. what is my risk benefit
2. am i a candidate
3. do i have co-morbidities (other illnesses) that will increase the risks
4. am I sufficienty knowledgable to make a truly informed decision
5. have i had adequate pre-procedural evaluation
6. have I found a treating doctor i trust and center to rely upon
7. can i get followup care arranged. will my doctors connect
8. can i afford financially this procedure, and its followup
9. do i have adequate emotional support
10. what does my gut tell me
11. do i feel like taking a chance
12. do i feel lucky"
I especially like the Clint Eastwood factor.
I wanted to add that one more consideration that has to play a part for anyone with MS (especially a high EDSS) is looking at how this approach compares to the risks of MS treatment approaches currently available and the risks of doing nothing. That may be included in your numbers there, under general risk-benefit, but for my part, I struggled with this specific issue when considering the whole idea, especially as an "early adopter."
So this is not a question, just an appreciation of your ability to bring it all together and my own addition from where I stood.
Thank you as always.