I am at a real loss here both emotionally and financially as I can't go back to Germany nor do I know if it would be worth it seeing how fast the vein collapsed, again.
I know you won't comment on this scenario as it wasn't your work. I just wanted to state that re stenosis can happen, almost immediately, following ballooning.
Thank you Dr Sclafani, I think it is immensely important and encouraging to know that you and these key CCSVI scientists/experts cooperate and share their experience!
Indeed researching with passion for the same cause and all of you trying to help people with your latest knowledge of research (within the possibilities of the research framework each country permits) !
I have been thinking about how to harness the energy and experience of patients on this site. I have fantasized about creating research measurement tools to learn about the subjective experiences after liberation. Imagine capturing the data and partnering on such a project.
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