drsclafani wrote:to tell you the truth, i dont know how anyone can do this procedure in an hour as i have heard related.
leetz wrote:my procedure took about 45minutes??????????
EJC wrote:drsclafani wrote:to tell you the truth, i dont know how anyone can do this procedure in an hour as i have heard related. Today, i am breezing along at 1.5 hrs with only an azygos to do, when challenges came up that result in a 3 hour procedure.
My partners actual procedure took around 90 minutes, however there was 30-40 minutes of preparation followed by a 90 minute procedure then 60 minutes of recovery.
She had both jugulars balooned (malformed valves opened) and the azygos (at the junction of the superior vena cava) and so far so good. you can see here results int he following thread if it's of interest to you:-
Anyhow, in Edinburgh they seem to be finding a very high level of (what they consider congenital) valve malformation, so my (non medical) mind has come up with the following thought:-
Many people seem to be putting CCSVI down to stenosis as the problem - but what if stenosis is actually another symptom and the problem is valve malformation or other physical obstructions which then lead to stenosis?Could it be that some of the centres are currently treating a symptom (stenosis) rather than the casue (valve problems or obstructions) which then leads to re stenosis?
Or have I put two and two together and got twenty two?
johnny21 wrote:Hello Dr Sclafani,
I had one relapse 3 years ago (one lesion in the spinal cord, one in brain; no new relapses so far). The lesion affected the strenght in my legs. I got cortisone but my legs still feel a bit weak. Since that i searched for possibilities to stop possible progression.
CCSVI seems to be this possibility.
I have a question that you might be able to answer to,
how big is the chance that the lesion in the spine can heal, that the damages in my legs disappear or improve? in general, is it possible that damages in the spine heal after a treatment or the progression stops for sure?
i hope you can answer my questions, thank you very much!
Thekla wrote:I have been wondering about the vertebral veins. I had heard from the 'Upright Doctor' who claims that upper cervical trauma like whiplash type soft tissue injuries could affect the vertebral veins. Have you looked at any vertebral vein problems? The doctors in Costa Rica make a point of checking jugular, azygos and vertebral as well as checking for May Thurner in their description on the website.
Is this a possible answer for those of us without easy to see massively blocked jugulars? It is frustrating to not have an easy to identify problem, especially when we are paying to play.
Cece wrote:drsclafani wrote:to tell you the truth, i dont know how anyone can do this procedure in an hour as i have heard related.
Skill, familiarity with the procedure, speed...and/or willingness to give up, accept less than 100%...and/or lack of skill so not even knowing what is being missed....
As much as I enjoy the discovery process, I wish we were through it and every patient was receiving the best standardized care.
leetz wrote:Hello Doctor...I was wondering if I should get another venogram thru the left femoral vein...I have had good results since the procedure on the 20th of Dec. 2010(ballooning of RIJV and LIJV)....but the dis-coloration in left foot and leg are still there and I was thinking May Thurner? Was wondering if I should get the iliac checked???? This might help other's as well getting the procedure (to ask the IR to go in through the left femoral vein) to eliminate problem(s) with iiliac vein????
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