This Is MS Multiple Sclerosis Community: Knowledge & Support

Dear Dr S,
...
What is your take on this imaging technique of the azygous I've heard of recently - the so called "occlusion phlebography", with the following setup:
Catheter is fed into the upper part of the azygous and then the vein is closed near its confluence with SVC by means of a compliant baloon inflation, so that blood flow towards heart is temporarily disabled. Then with only a single dye injection, the whole azygous system becomes visible at once (assuming the dye can flow backwards into all veins - would this apply only for a healthy azygous system?). The idea here is to possibly replace multiple step-wise dye injections typically done while moving the catheter tip upwards from the very bottom. Would you find such type of images interesting, at least to get a first global picture of the azygous system? Do you see any issues with such an approach?(Unfortunatelly, I do not have any images to show here)
...
All the best for 2011!

Dear Dr. Sclafani,

I agreed check-in Tokuda Hospital.
Please give me one of your opinions.
I had a stenosis of both jugular veins of 80-90% and 30% of the azygos. Angioplasty was performed only on the jugular veins.
Would the result of liberation treatment was better to have intervention on azygos vein?

I see that good imaging is clearly the Key preposition for any successful angioplasty treatment.
I re-post a question regarding an alternative phlebography imaging technique (possibly a kind of shortcut/speed-up?):

JJ

Dr. Sclafani this might be a stupid question but, if you have reflux in the jugular that also has a clot, is it plausible that the reflux can cause the clot to move back to the brain and cause a stroke?

Thanks for the answer.

Hello Dr Sclafani,

I had one relapse 3 years ago (one lesion in the spinal cord, one in brain; no new relapses so far). The lesion affected the strenght in my legs. I got cortisone but my legs still feel a bit weak. Since that i searched for possibilities to stop possible progression.
CCSVI seems to be this possibility.
I have a question that you might be able to answer to,
how big is the chance that the lesion in the spine can heal, that the damages in my legs disappear or improve? in general, is it possible that damages in the spine heal after a treatment or the progression stops for sure?
i hope you can answer my questions, thank you very much!

johnny

Hello Dr Sclafani,
I had my procedure one month ago in Albany. I didn't feel any improvements right awaybut after about three days I had some great stuff happen. Twice I walked 25 minutes, another day I walke 15 minutes while holding my baby, and then around one mile. Since then my improvements have disappeared and I feel even a little worse -- maybe a post pregnancy flare? (It's only been two months). I know placebo can be one answer as to why I had such good results, but I think know my body well enough to say it was real. Do you think I could have restenosis after less than two weeks? I plan to have an ultrasound in a month, so I hope to get some clarity, but wanted your opinion on restenosis.
BTW, both jugulars were almost completely closed and my azygous needed treatment as well.
Thank you and sorry for the long-winded message.

Dr

DX RRMS 2010 no DMD – CCSVI LIJ stenosis of the mid third – ballooned
At my 6mt follow up no stenosis – in the upper third of the right internal jugular vein there is extrinsic indentation from the adjacent common artery bifurcation ???. Flows are within limits.

My neck on the right side does give me pain to include the right of brain stem in addition to this I have a large mottled red rash (under my ear) that is sore/hot the rash this first appeared following my attack were I was first DX stroke…. (Weeks later) Then DX MS . Previous medical problems history of migraines… odd feeling in throat bottom lip tremor

Carotid sinus does this fit in line with CCSVI ?? And should I have this further investigated

Dr.
My physical therapy/fitness center has acquired a WBV (whole body vibration) machine & have encouraged me to try it. I had ccsvi treatment 2 months ago. Is this a machine something I should utilize or would it be a negative to me having had angio recently? Also, in general has WBV proved helpful for ms? Thanks.

A long time ago you kindly took the time to answer this question of mine:



At the time I was worried about the possibility of being untreatable - it turns out that it was quite possible to balloon both jugulars. But only now I'm turning back to what you said about your being aware of another patient for who occlusion of the subclavian vein may have been a trigger for MS and, when I got my treatment in Alexandria, I completely forgot to mention my subclavian vein. Not very clever of me.

If the subclavian vein is occluded do you expect that it will be difficult to treat, given that there is a discarded length of stainless steel wire there? Could I send you my Dicom venogram images so that perhaps you could tell me if it is occluded or not, if possible? I'd be very grateful.

Dr S,

a little while ago I posted my MRV - which indicated a problem low in my right jugular. You

asked to look at the venogram, and found what could potentially be a "wind sock" type

structure in my lower right jugular. Anyway, I had another venogram just before our

discussion - and now have the images. First...here is a before/after shot of my train wreck

left jugular which now looks quite nice:

[img][img]http://farm6.static.flickr.com/5164/5353475537_9ea1edc0d5.jpg[/img]
left_jug_before_after by anatomical, on Flickr[/img]

And here is a before/after shot of my right lower jugular:

[img][img]http://farm6.static.flickr.com/5169/5354090182_1485ab7016.jpg[/img]
lower_right_jug_before_after by anatomical, on Flickr[/img]

It should be noted that a modest stenosis was found in the upper third of the right vein, and the right valve appeared thickened. A delay in draining was observed. The upper area, and valve were ballooned. I can provide more images if need be. I suspect I didn't select the best image last time during our "wind sock" discussion.

I feel the latest angio treatment had a huge effect on my symptoms (my right arm no longer goes dead in any postural position)...though still have some modest odd sensations in the right side of my face, and tightness on the right side of my head.

Helen

Dear Dr. Sclafani,

I agreed check-in Tokuda Hospital.
Please give me one of your opinions.
I had a stenosis of both jugular veins of 80-90% and 30% of the azygos. Angioplasty was performed only on the jugular veins.
Would the result of liberation treatment was better to have intervention on azygos vein?