Liberation wrote:Dear Dr. Sclafani,
I have PPMS for about 4 yers ago; however, I can still walk a few hundred meters at a normal pace at one time and can be in a motion for the whole day. I already had a CCSVI procedure about a month ago. They found a long, medial stenosis in the right IJV that was dilated. The left IJV and the azygos was fine. Unfortunatelly, I just found out a month after the operation that my right IJV got restenosed in a 1 cm long section. As my condition continued deteriorating I am just wondering if the deterioration could be due to restenosis or some veins other than IJV and azygos are also stenosed. Why do no one check other veins for these patients at most of the hospitals? Dr. Salvi, a neurologist working with dr. Zamboni, said clearly that they found a sort of ABSENCE of VENOUS OUTFLOW from the SPINAL CORD in case of PPMS patients and in most cases there was NO problem with IJVs. PPMS patients have laesios in the SPINAL CORD not only in the brain. Are interventional radiologists considering these facts when doing the CCSVI procedures? Is there a relation between the location of the laesios (e.g. brain, thoracic, lumbar or cerical part of the spinal cord) and the veins stenosed? What is your view on the veins that could potentially play a role causing laesios in the different part of the spinal cord and therefore at PPMS patients?
Look forward to hearing from you.
My proceedure begins with an injection of the left ascending lumbar vein which attempts to visualize the veins of lower spine, called the lumbar veins which also connect to the inferior vena cava and the renal vein. before proceeding to connect with the hemiazygous vein.
among the malformations that occur are poor development of the lumbar veins, leading to agenisis, which is absence, or hypoplasia which is underdevelopment. Many physicians do not perform these venograms because there is really no possible treatments for these maldeveloped veins. they take time. They are often not reimbursed by insurers.
i think that they are necessary to unravel more of the story and help patients understand the ccsvi picture better.