Physical Therapy as follow up to treatment for CCSVI
Dear Dr. Sclafani,
Thought I would try this in the public thread
As you know, I was treated originally on January 10th, had thrombosis of the left IJV . . so that was cleared out on Feb 4th, I'm on coumadin. doppler showed some clotting again yesterday, but I have no reflux. I now have Left IJV's 1 and 2 (a large collateral).
I was formally diagnosed RRMS in July 2008. I was still fully mobile at that time.
I've had some very good improvements (which I should put in the Tracking project thread). I think I fit in the moderate improvement category. I'm not in stiletto heals.
I have stronger legs, still some numbness in the top of my feet, I feel my lower legs a bit more. My feet are sensitive to temperature where they were not before.
I still do not have full control of my legs, although if I concentrate, I can walk without a cane but must think of every step. Balance is still questionable, I DO have much less brain fog and can sleep and dream.
I feel as though progression has stopped.
Its been recommended by other MS friends and a nurse at Dr. Haskals office, as well as one of the MSketeers, that physical therapy is AS important to regaining lost mobility.QUESTION IS THIS:
I'd spoken at length with Dr. Suchin about this, but have not gotten an indication that this should be a standard part of the treatment process . .physical therapy.
It's been said by the nurse, Angela and Carol Schumacher (treated by Haskal), that we should be treated as a stroke patient.
Then we could recover a lot more. Has this been discussed among you? Do you believe this will become part of the treatment/recovery plan?
I'd love if there were some sort of recovery plan and referal partnering for PT.