This Is MS Multiple Sclerosis Community: Knowledge & Support

happy poet, now that's the kind of news we all love to hear. so happy for you!!

thank you "dr. sclafani"

i cannot imagine routinely doing four dilatations a year to prevent restenosis. i have never heard any evidence that this is a good idea. Be careful.

we will be consulting a neurointerventionalist who has considerable experience with dural sinus stenosis that causes hydrocephalus. He is a disbeliever in ccsvi. he will remain anonymous for obvious reasons.

Superpatient....how is the rest of you?

Superstar,

I'm very happy to report that I'm doing very well.

The follow-up US showed strong flow throughout my IJVs (90% and 99% blocked!). Your great skill and vast experience (30 yrs in Brooklyn!), and anticoagulation therapy at work.

I'm still enjoying much brighter vision which gives me much hope that progression of my bilateral ON will be slowed or stopped. Also, I'm still enjoying having my balance restored -- no more bumps 'n bruises!

My daughter sends a big hello and reminds me I forgot to say that our family made the best decision of our lives in going to you, Superstar.

Dr. Sclafani,

What vein or veins are normally responsible for draining the ears?

I suddenly lost my hearing in my right ear in 2003, a year and half before the diagnoses of MS. I am left with dizzyness and tinitus from my right ear. Multiple ENTs offer no help or hope. In the past year or so I notice my left (good) ear feeling plugged at times, especially at night while trying to sleep. I'm hoping that the Liberation procedure will help me in that area.

Thank you,

WeWillBeatMS

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<div>WeWillBeatMS<br /><br /><br />Zamboni for President!</div>

I inferred from what they said that they did not treat the upper part of the IJV. I was just told that from now on they are treatining the full IJV. What could be the reason why they generally did not treat the upper part. Could it be more dangerous to do so? Are everyone else has treated also the upper part of IJVs?



I guess what he meant is that so far they waited circa half a year with the follow-ups and with repeating the procedure. With four times a year they must have meant that if restenoses occurs then they would repeat the procedure in three months. So, if it is neccessary four times a year. Would that make sense?



Is my understanding is correct that with your technique you still benefit from using large balloons but without (at least less) the risk of using large ballons?

Liberation, I am an example, he used an 18 mm balloon on my right jugular which would be considered one of the extra large balloons except that he measured with ivus and it was rightly sized for that vein.

I am so confused.. is the current theory that ccsvi is a valve problem or not?

Dr Sclafani,
I sent an email to you yesterday but your (pending) answer may also be of interest here. You treated my right IJV in the region of the confluence(left IJV was occluded/thrombosed since first angio which was treated by another dr). I am now experiencing swelling and tenderness on the right side of my neck. Normally, I would just think I have swollen glands but I'm a bit more concerned since I already have reduced blood flow due to LIJV. How concerned should I be? I have my 3 mo. f/u with Dr Makris 5/3/11... thanks!

Would love to hear his take on it, alas, if only he were an open book too.

I am sorry to ask and no pressure but are you less inclined now to put up images and teaching examples as you have before, or is it just that you have been so busy? I enjoyed them.

you actually stretch it often to tear it. problem is that the scar reforms. So scar formation is to be avoided as much as possible. however its better than nohing at all and sometimes it remodels and lasts for a long time.

hearing loss is complicated. damage to any of the structures involved can result in deafness.
the sound is funneled into the ear, goes through the canal where it vibrates the tympanic membrane. the vibrations of the tympanic membrane are amplified by the ossicles of the middle ear to the oval window. This vibration stimulates the Hair cells which conduct current into the auditory nerve. This is conducted back taward the brain via the brain stem into the thalamus and finally ending temporal cortex of the brain..
So MS can cause deafness by demyelinization of the autitory nerve or anything in the pathway to the cerebral cortex

i am going to have to put some ivus movies on you tube for you to understand this. Yes, the valvular area is most commonly involved. It appears by ivus to be inability of the valves to open either by fusion or adhesion of the valve leaflets or developmental anomaly.

get a simple compression ultrasound to look for blood clot now.