This Is MS Multiple Sclerosis Community: Knowledge & Support

And Holly must be working overtime since I rec'd an email and she's posted on this site - both of which were way past 5:00 EST. Gotta love the devotion from that office!

I've received emails from Holly at 1:30 am. She needs a little vacation.

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lyon, i see that you enjoy the debate, but its not a game

to answer your question, my control has included about 100 carotid arteriograms per year done to evaluate intracranial aneurysms and trauma of the neck. The venous phase of those ARTERIOGRAMS show me the jugular vein. working for 38 years , i guess that is ober 3,000 arteriograms on otherwise normal people without MS, (my general patient population is young healthy african american males). I never see the slow flow, the narrowings, that i see on the VENOGRAMS of caucasian MS patients. That is my control.

Unfortunately most of those arteriograms were cut film studies done over the first thirty years of my practice when CTA was used most of the time for aneurysms and penetrating neck trauma was reduced by the dramatic reduction in violence in New York since the year 2000.

Not a randomized study. so you win lyon.

nonetheless i am confident in my assessment.

nicely said.

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On the bandwagon of Dr. Sclafani officially now Lyon?

Dr. Sclafani,

You rock!

Ang

You had said early on that you had not seen these sorts of twisted malformations before...I had not known for sure what that meant exactly or how often you were up in the neck looking...this answers that question and then some.



I think it was his sarcasm showing again when he said you win.... But seriously Lyon welcome aboard....

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

nothing changes with dear old Bob


Mr. Success

HAHAHA I wouldnt bet on that my dear doctor...

Dear Dr Sclafani,
I know stent issue was already discussed, but lost a bit the overview to follow on all the answers...Hope my questions are not too repetitive:

1. Is it true that in a few months(?)/years(?) - how long do you think it will take? - new specific vein stents will be developed and placed on the market?

2. What is the advantage/difference of these stents compared to the currently applied nitinol stents? Is there really any advantage/big difference at all?

3. Basically could it be worthwile for the moment to go only for angioplasty (with risk of restenosis) and wait for these new vein stents or will those not change much in terms of potential risk/advantages - the risk and advantage mainly remaining in the same range? So might some of these news of new stents to be developed for veins be only a marketing issue?

4. Is it generally difficult/or even impossible to replace stents later on, or depends on where the stent is placed? eg in internal jugular close to junction of brachiocephalic vein could be problematic to replace? other areas easier to remove and replace?

Thanks a lot for your views on this!

Count me in, I'd love to help!

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Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5

Oh, doc, great idea, I guess many of us would! Standard criteria and research measurement tools assisting interventionists in developing comparable observational studies on CCSVI across the world would be great! Such observational studies could then support the direction of results from clinical trial work, I guess!

Many U.S. health insurance companies cover MRV and ultrasound tests for CCSVI. If CCSVI is confirmed through this testing, will these same insurance companies cover the Liberation treatment if it follows an IRB?

The costs to insurance companies for current MS drugs is staggering. Even if the Liberation procedure was required every 18 months to address restenosis, it would still be less expensive to an insurance company than current drug treatments.

Are insurance companies following CCSVI developments? I know Big Pharma is and they don't like it!